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What a Year! Thank you FAST Community!

In 2021, you helped to raise $5.9M+ in fundraising so we could disburse $3M+ in grants!

The FAST community continues to accelerate our mission to find a cure through their incredible generosity and countless hours of volunteering to help us execute our funding philosophy of C.U.R.E.-AS.  As we Collaborate and Understand we are Ready to Expedite resources towards the innovative research to accelerate the most promising research and therapeutics in the pipeline.

In 2021, our community raised a total of $ 5,925,382 through our annual Cure Angelman Now (CAN) fundraising campaign, our annual gala and other funding initiatives. Because of our community’s generosity, we can fund $3,009,992 in grants to the following top academia universities, researchers and scientists on our roadmap to a cure:

University of California/Davis

Creation of Robust Infrastructure Including Molecular, Neurobehavioral & Biomarker Testing

  David Segal, Ph.D.; Kyle Fink, Ph.D.; Jill Silverman, Ph.D.

University of California/Davis

Hematopoietic Cell Gene Therapy for Angelman Syndrome

   Joseph Anderson, Ph.D.; Mehrdad Abedi, M.D.

Yale University School of Medicine

AS Human IPSC Biorepository Project & Angelman Syndrome Large Deletion Mouse Model

    Yong-Hui Jiang, M.D., Ph.D.

North Carolina State University

Engineering Human Stem Cell Models for Multiple Angelman Syndrome (Epi) Genotypes

    Albert Keung, Ph.D.

Duke University, School of Medicine

Advancing the Observer-Reported Communication Ability (ORCA) Measure for Individuals with Angelman Syndrome as an endpoint for clinical trials

     Bryce Reeve, Ph.D.

Texas A&M University

Translational Research in a Large Animal Model of Angelman Syndrome

      Scott Dindot, Ph.D.

University of Pennsylvania

Using an miRNA approach for the Treatment of Angelman Syndrome

      Jim Wilson, M.D., Ph.D.

Colorado Children’s Hospital

24/7 AS Emergency Care Hotline

       Jessica Duis, M.D.

Research Triangle Institute International & Boston Children’s Hospital

FAST & Angelman Syndrome Biomarker and Outcome Measure Consortium (ABOM) funding initiative for advancing endpoints in AS clinical trials.

We will continue to update our community on all our initiatives that your donations have made possible. We look forward to having more conversations about the advancements in research and the cutting-edge technology that is accelerating all our initiatives. Thank you to the families with individuals living with Angelman syndrome.

Disclaimer

This website contains information for a broad audience and may include information on current and upcoming programs that are not yet approved or accessible The information provided is for general informational purposes only and is not intended as medical advice, diagnosis, or treatment. While FAST strives to provide accurate and up-to-date information, the content on this site may not always reflect the most current research or clinical guidelines. The inclusion of clinical trial information, treatments or specific healthcare providers does not imply endorsement, recommendation or guarantee of safety, efficacy, or availability. Reliance on any information provided by this website is solely at your own risk. FAST disclaims any liability for any errors or omissions in the information provided or for any decisions made based on this information. For personalized medical advice or specific health concerns including participation in any clinical trial, please consult a qualified healthcare professional.