The Foundation for Angelman Syndrome Therapeutics (FAST) and the Angelman Syndrome Foundation (ASF) continue to work collaboratively on matters related to advocacy.
While we are disappointed that our EL-PFDD meeting has been postponed, we look forward to new ways to take action.
Please review the most recent updates and tools, taking action on anything that resonates with you and your family:
Join us for the 2025 AS Congressional Advocacy Day in Washington, DC and be sure to book your hotel by Feb 11th!
Explore our new Advocacy toolkit to see how you can make a difference at the local level.
Read the letter signed by ASF, FAST, and over 200 rare disease organizations to Trump Administration regarding rare disease policy priorities.
Let lawmakers know how Medicaid impacts your loved one and why it must be protected.
Be sure to check them out on the Hope in Action Advocacy Website for all information related to joint advocacy work between our organizations!