You’ve found your way to our website and a support system that will help you understand Angelman syndrome and make sense of your child’s diagnosis.
Angelman syndrome has been cured multiple ways in mice, and the progress our scientists are making is nothing short of thrilling.
Parents of children with Angelman Syndrome, who know what a diagnosis like this is like, are standing by to answer your questions and assist you.
Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Symptoms include, but are not limited to: delayed developmental milestones; gross and fine motor impairment; difficulty with feeding and swallowing; issues; loss of functional speech and epilepsy.
Connect with other people who have a child or loved one with Angelman syndrome.
Annually, FAST hosts our Global Summit & Gala. Over 1,000 AS family members come from across the world to attend this event. It begins with a robust science summit, featuring updates on the latest Angelman syndrome research and clinical trials. The following day includes an informative educational summit with best practices in education and therapy. The weekend concludes with a star-studded gala featuring live entertainment, celebrity meet and greets, and the opportunity for you to hang out with your friends. This is truly one of the most encouraging and hopeful weekends of the year – you don’t want to miss it!