Newly Diagnosed?

You’ve found your way to our website and a support system that will help you understand Angelman syndrome and make sense of your child’s diagnosis.

Here are two things we want you to know right away:
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There is hope for treatment & a cure

Angelman syndrome has been cured multiple ways in mice, and the progress our scientists are making is nothing short of thrilling.

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You are not alone

Parents of children with Angelman Syndrome, who know what a diagnosis like this is like, are standing by to answer your questions and assist you.

UnderstandingAngelman Syndrome

UnderstandingAngelman Syndrome

Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Symptoms include, but are not limited to: delayed developmental milestones; gross and fine motor impairment; difficulty with feeding and swallowing; issues; loss of functional speech and epilepsy.

$ 0 M
Funded by FAST in research towards a cure for Angelman syndrome
~ 0 K
Individuals living with
Angelman syndrome worldwide
0
FAST-funded grants for Angelman syndrome research and advancement of therapeutics
0
Pharmaceutical companies interested in developing a potential therapeutic for Angelman syndrome
0
FAST-funded potentially
disease-modifying therapeutics
0
Clinical trials
for Angelman syndrome
1
Committed community
rallied around one single gene
$ 0 M
Funded by FAST in research towards a cure for Angelman syndrome
~ 0 K
Individuals living with Angelman syndrome worldwide
0
FAST-funded grants for Angelman syndrome research and advancement of therapeutics
0
Pharmaceutical companies interested in developing a potential therapeutic for Angelman syndrome
0
FAST-funded potentially disease-modifying therapeutics
0
Clinical trials for Angelman syndrome
1
Committed community rallied around one single gene

Join our Community

Connect with other people who have a child or loved one with Angelman syndrome.

Resources

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As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!
FAST offers community support to families at critical milestones of their child’s life, including support for the parents of children entering school for the first time or for parents of children transitioning to adulthood.

Annually, FAST hosts our Global Summit & Gala. Over 1,000 AS family members come from across the world to attend this event. It begins with a robust science summit, featuring updates on the latest Angelman syndrome research and clinical trials. The following day includes an informative educational summit with best practices in education and therapy. The weekend concludes with a star-studded gala featuring live entertainment, celebrity meet and greets, and the opportunity for you to hang out with your friends. This is truly one of the most encouraging and hopeful weekends of the year – you don’t want to miss it!

can3.1.21
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!