FAST attended the 8th Angelman Syndrome Alliance (ASA) Congress in Coventry, UK. Ellen Koekoeckx (FAST Global Advisor) and Amelia Beatty (FAST Board of Directors) had the privilege of representing FAST Headquarters. The event was a valuable opportunity for FAST to engage with the broader Angelman community and learn about the impactful work being funded by the ASA.
For those unfamiliar with the organization, the Angelman Syndrome Alliance (ASA) is dedicated to improving the lives of individuals affected by Angelman syndrome through collaboration, research, and support. Founded as a coalition of 13 organizations from around the globe, ASA aims to advance scientific understanding and develop effective therapies.
Throughout the Congress, we were inspired by the commitment and passion of all the representatives and researchers involved. It was a powerful reminder of the importance of collaboration among patient organizations like ours. By working together, we can accelerate the progress toward effective treatments and ultimately a cure for Angelman syndrome.
We would also like to extend our heartfelt thanks to Angelman UK for their excellent organization of the event. The Congress provided a wonderful platform for knowledge sharing, networking, and strengthening our collective efforts in the fight against Angelman syndrome.
As we return with new insights and strengthened partnerships, we are more committed than ever to our mission. Together with our fellow organizations, we are making strides toward a brighter future for those living with Angelman syndrome.
