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Families & Caregivers

Resources for Caregivers

The world of Angelman syndrome is complex and unique for families, friends, and caregivers. Every child is different and each family has their own needs.

We want our community to have an arsenal of resources in order to make informed decisions for your loved ones today, future, and everything in between.

Not finding the answers you need? Contact us! info@cureangelman.org

Resources for caregivers:

Angelman Syndrome News

2024 Global Science Summit Recap

Ionis Pharmaceuticals releases information on their planned phase 3 clinical trial for Angelman syndrome

CAN Spotlight: Remi Cup 2024

The PFDD Survey is now open

Watch the Clinical Trials 101 Video

Watch the ASF | FAST Ultragenyx Community Webinar recording

FAST UK hosts Art for Angelman 2024

CAN Spotlight: Bike for Briar’s MEGA Meat Raffle

CAN Spotlight: All in for Olin Fundraiser

Ultragenyx Community Update October 2024

CAN Spotlight: Friends of James Oktoberfest

CAN Spotlight: Maddie's Mission 3rd Annual Block Party Tailgate

CAN Spotlight: 100 mile Coast to Coast Triathlon for Angelman Syndrome

CAN Spotlight: Granville Angels 2nd Annual Cornhole for a Cause

Celebrating the First Angelman Syndrome Congress in Latin America: A Milestone for FAST Latam

2024 Global Science Summit Sneak Peeks

CAN Spotlight: 4th Annual Charlie’s Angels Chari-Tee Golf Tournament

Tell Congress to support vital programs that impact our community

FAST Gains New Leaders on Board and Council

Developmental milestones and daily living skills in individuals with Angelman syndrome

2024 Global Science Summit Recap

Ionis Pharmaceuticals releases information on their planned phase 3 clinical trial for Angelman syndrome

CAN Spotlight: Remi Cup 2024

The PFDD Survey is now open

Watch the Clinical Trials 101 Video

Watch the ASF | FAST Ultragenyx Community Webinar recording

FAST UK hosts Art for Angelman 2024

CAN Spotlight: Bike for Briar’s MEGA Meat Raffle

CAN Spotlight: All in for Olin Fundraiser

Ultragenyx Community Update October 2024

CAN Spotlight: Friends of James Oktoberfest

CAN Spotlight: Maddie's Mission 3rd Annual Block Party Tailgate

CAN Spotlight: 100 mile Coast to Coast Triathlon for Angelman Syndrome

CAN Spotlight: Granville Angels 2nd Annual Cornhole for a Cause

Celebrating the First Angelman Syndrome Congress in Latin America: A Milestone for FAST Latam

2024 Global Science Summit Sneak Peeks

CAN Spotlight: 4th Annual Charlie’s Angels Chari-Tee Golf Tournament

Tell Congress to support vital programs that impact our community

FAST Gains New Leaders on Board and Council

Developmental milestones and daily living skills in individuals with Angelman syndrome

Disclaimer

This website contains information for a broad audience and may include information on current and upcoming programs that are not yet approved or accessible The information provided is for general informational purposes only and is not intended as medical advice, diagnosis, or treatment. While FAST strives to provide accurate and up-to-date information, the content on this site may not always reflect the most current research or clinical guidelines. The inclusion of clinical trial information, treatments or specific healthcare providers does not imply endorsement, recommendation or guarantee of safety, efficacy, or availability. Reliance on any information provided by this website is solely at your own risk. FAST disclaims any liability for any errors or omissions in the information provided or for any decisions made based on this information. For personalized medical advice or specific health concerns including participation in any clinical trial, please consult a qualified healthcare professional.