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Families & Caregivers

Resources for Caregivers

The world of Angelman syndrome is complex and unique for families, friends, and caregivers. Every child is different and each family has their own needs.
About Angelman Syndrome & How to Get Involved

For you, your friends and family, schools, doctors and therapists—whomever in your life needs to know about AS and how they can help. To request a digital link or physical copies mailed to you, click the GIF below.

About Angelman Syndrome & How to Get Involved image

Resources for caregivers:

Additional Resources Specific to Care:

Angelman Syndrome News

FAST Germany’s Wachgeküsst campaign

Update on Advocacy Efforts and Ways to Get Involved in 2025

Ultragenyx Announces First Patient(s) Dosed in Pivotal Phase 3 Aspire Study Evaluating GTX-102 in Angel...

FAST Spain Awards First Research Grant

FAST and ASF Advocate for Crucial Legislation

CAN Spotlight: 2nd Annual Hole Out Fore Heath Golf Tournament

CAN Spotlight: Paddle Party for a Purpose

FAST and ASF Announce their Partnership with the Institute for Gene Therapies

RSVP for the January 2025 EL-PFDD Meeting

2024 Global Science Summit Recap

Ionis Pharmaceuticals releases information on their planned phase 3 clinical trial for Angelman syndrome

CAN Spotlight: Remi Cup 2024

The PFDD Survey is now open

Watch the ASF | FAST Ultragenyx Community Webinar recording

Watch the Clinical Trials 101 Video

CAN Spotlight: Bike for Briar’s MEGA Meat Raffle

FAST UK hosts Art for Angelman 2024

CAN Spotlight: Friends of James Oktoberfest

CAN Spotlight: All in for Olin Fundraiser

Ultragenyx Community Update October 2024

FAST Germany’s Wachgeküsst campaign

Update on Advocacy Efforts and Ways to Get Involved in 2025

Ultragenyx Announces First Patient(s) Dosed in Pivotal Phase 3 Aspire Study Evaluating GTX-102 in Angel...

FAST Spain Awards First Research Grant

FAST and ASF Advocate for Crucial Legislation

CAN Spotlight: 2nd Annual Hole Out Fore Heath Golf Tournament

CAN Spotlight: Paddle Party for a Purpose

FAST and ASF Announce their Partnership with the Institute for Gene Therapies

RSVP for the January 2025 EL-PFDD Meeting

2024 Global Science Summit Recap

Ionis Pharmaceuticals releases information on their planned phase 3 clinical trial for Angelman syndrome

CAN Spotlight: Remi Cup 2024

The PFDD Survey is now open

Watch the ASF | FAST Ultragenyx Community Webinar recording

Watch the Clinical Trials 101 Video

CAN Spotlight: Bike for Briar’s MEGA Meat Raffle

FAST UK hosts Art for Angelman 2024

CAN Spotlight: Friends of James Oktoberfest

CAN Spotlight: All in for Olin Fundraiser

Ultragenyx Community Update October 2024

Disclaimer

This website contains information for a broad audience and may include information on current and upcoming programs that are not yet approved or accessible The information provided is for general informational purposes only and is not intended as medical advice, diagnosis, or treatment. While FAST strives to provide accurate and up-to-date information, the content on this site may not always reflect the most current research or clinical guidelines. The inclusion of clinical trial information, treatments or specific healthcare providers does not imply endorsement, recommendation or guarantee of safety, efficacy, or availability. Reliance on any information provided by this website is solely at your own risk. FAST disclaims any liability for any errors or omissions in the information provided or for any decisions made based on this information. For personalized medical advice or specific health concerns including participation in any clinical trial, please consult a qualified healthcare professional.