Families & Caregivers
International Angelman Day: Feb 15
Two AS parents started IAD in 2013 and engaged 31 Angelman syndrome organizations from around the world to join their efforts. Today, IAD has grown to over 50 AS organizations participating worldwide!
February 15th is significant because February is Rare Disease Month and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman syndrome.
The purpose of this day, as described by Angelman Day Info, is to:
Raise awareness worldwide of the condition;
Mobilize people to action & encourage fundraising for the individual organization in their country;
Promote research and educational resources in the organization’s own country; and
Remember those people with Angelman syndrome who are no longer with us.
Check out last year's news round up and who "Lit it up in blue" around the world!
Ways to Participate
Below are resources for the community to share with others to help bring awareness to Angelman syndrome and your loved one's personal journey. If you need help or are looking for something specific, please email meghan@cureangelman.org!
Be sure to use the hashtags #IADFeb15 #AngelmanSyndrome #CureAngelman