Families & Caregivers
International Angelman Day: Feb 15
International Angelman Day (IAD) is an opportunity to raise awareness of Angelman syndrome on a global scale!
Two AS parents started IAD in 2013 and engaged 31 Angelman syndrome organizations from around the world to join their efforts. Today, IAD has grown to over 50 AS organizations participating worldwide!
February 15th is significant because February is Rare Disease Month and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman syndrome.
The purpose of this day, as described by Angelman Day Info, is to:
Raise awareness worldwide of the condition;
Mobilize people to action & encourage fundraising for the individual organization in their country;
Promote research and educational resources in the organization’s own country; and
Remember those people with Angelman syndrome who are no longer with us.
Check out last year's news round up and who "Lit it up in blue" around the world!
Ways to Participate
Below are resources for the community to share with others to help bring awareness to Angelman syndrome and your loved one's personal journey. If you need help or are looking for something specific, please email community@cureangelman.org!
RAISE ANGELMAN SYNDROME AWARENESS WORLDWIDE
Social Media / Digital:
Social Media Profile Frame (coming soon)
Social Media cover photos (coming soon)
Tag FAST (@cureangelman) & use global hashtags:
#InternationalAngelmanDay
#AngelmanDay2025
#cureangelman
In-Person:
Go Blue!
Ask your local council/city to illuminate an important building in blue and use the lighting blue toolkit as a guide!
Paint your nails
Bake cookies
Decorate your house
Create Awareness in Your Community & Classroom
Template letter to the school administration - (coming soon)
Template letter from school administration to parents (Full school) - (coming soon)
Template from family to students’ parents (Class participation) - (coming soon)
Print out and distribute coloring pages courtesy of Whitney Causey, Associate Professor of Studio Art at the Louisiana Tech University School of Design and mother of M’Lynn, who lives with AS.
Have a glow party with glow in the dark blue bracelets or wands - ex: Glow Bracelets
Purchase books to teach about Angelman syndrome:
Show videos explaining AS to others:
Reach out to your local media using this sample press release
PROMOTE RESEARCH & EDUCATIONAL RESOURCES
Educational Resources
FAST is working on resources to share with family & friends to help educate on the Angelman syndrome and the current research and updates.
Angelman Syndrome Research
Learn about the Angelman syndrome drug development pipeline
Explore Angelman syndrome literature in our new Repository
Understand the tools available to streamline therapeutic development for AS
MOBILIZE PEOPLE TO ACTION & ENCOURAGE FUNDRAISING
Join the Cure Angelman Network (CAN)
The Cure Angelman Network (CAN) is a group determined to help Cure Angelman Now. It is a community; a network of opportunities (big and small) to support one another and those living with Angelman syndrome.
Create your 2025 fundraising page - coming soon!
Remember Those Living with AS Who Are No Longer With Us
One of the purposes of International Angelman Day, is to remember those people with Angelman syndrome who are no longer with us. Although people who have Angelman syndrome do have a normal life expectancy, complications can arise due to the effects of this disorder, and many have passed on from illness or accidents.
Courtesy of the International Angelman Day website.