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Angelman Syndrome News
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05/16/2024
Ionis announces positive topline results from Phase 1/2a trial of ION582 for Angelman syndrome
05/14/2024
Purdue WellCast Study
05/14/2024
Skating Angels host their Annual Hockey Tournament
05/14/2024
Understanding Clinical Outcome Assessments (COAs) Used in Clinical Trials
04/30/2024
Newly published article on research exploring the epigenetic landscape of Angelman syndrome
04/30/2024
2023 CAN Grand Prize Trip
04/22/2024
FAST’s Genetic Services & Education
04/17/2024
April 17, 2024 Newsletter | What to Know
04/15/2024
Ultragenyx Announces Positive Interim Phase 1/2 Data in Patients with Angelman Syndrome After Treatment with GTX-102
04/01/2024
Dr. Cesar Ochoa-Lubinoff
04/01/2024
Welcoming FAST Germany
04/01/2024
FAST LatAm Updates
03/19/2024
Inaugural Angelman Syndrome Congressional Advocacy Day Round-Up
03/19/2024
Global Spotlight: Heather Brady
03/07/2024
Family Advocates Urge Congress’ Support During Inaugural Angelman Syndrome Congressional Advocacy Day
03/05/2024
MENA Angelman Symposium Q&A
03/05/2024
New FAST-TRAC grant collaboration with Dr. Alvin Huang
03/05/2024
How Clinical Trials Work
02/29/2024
A Message from Lauren Black
02/21/2024
International Angelman Day 2024 Round-Up
02/20/2024
Rare Disease Week 2024
02/07/2024
Warrior Wednesday: Kristina
01/03/2024
Ultragenyx Pharmaceutical Ultragenyx announces completion of enrollment in Global Phase 1/2 Trial of GTX-102
12/19/2023
2023 Year in Review
12/11/2023
FAST receives Advanced Therapies Awards Nomination
12/11/2023
Spread Your Wings Gala
12/11/2023
Introducing Ellen Koekoeckx as Global Advisor
12/11/2023
New FAST-TRAC Grant
12/08/2023
Advocacy: FAST & ASF work together for policy change
11/28/2023
Good Morning, Gus
11/28/2023
CAN Spotlight: Hole Out Fore Heath
11/22/2023
FAST announces new board chair, Ryan Jacob
11/22/2023
Ryan Jacob Assumes Board Chair Role At Foundation for Angelman Syndrome Therapeutics
11/21/2023
2023 Cure Angelman Now (CAN) Fundraising Recap
11/20/2023
UNC Brain Development Study of Infants with AS
11/20/2023
CAN Spotlight: Remi Cup
10/16/2023
Ultragenyx Pharmaceutical provides AS Development Pipeline Updates
10/13/2023
Recruitment Open for Roche Aldebaran Study
10/10/2023
New FAST-funded Study on Brain-Derived Neurotrophic Factor Activity
10/03/2023
NIH Announces Large Grant for Gene Editing Platform to Yale University, Foundation for Angelman Syndrome Therapeutics and RUSH University Medical Center
10/03/2023
New FAST and ABOM Study Focuses on Motor Function as a Critical Aspect of Angelman Syndrome
09/05/2023
New publication supported by FAST and ABOM about the Vineland Adaptive Behavior Scales
08/28/2023
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