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April 17, 2024 Newsletter | What to Know

This week's e-newsletter includes:

  • An update from Ultragenyx Pharmaceuticals

  • Announcing FAST's new VP of Genetic Services & Education

  • A reminder to fill out the diagnostic module in the Global Angelman Syndrome Registry

  • Support for newly diagnosed families

  • An update on joint advocacy work with the Angelman Syndrome Foundation (ASF)

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