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FAST Angelman Syndrome News

A Sister-Led Sip & Shop Turns Jewelry Into Support for FAST

FAST Brings Angelman Syndrome Community Perspective to FDA Rare Disease Roundtable

Update on Rugonersen Development and Planned Phase 3 Study  (BEACON)  

Non-viral delivery gene editing takes an important step forward for Angelman syndrome

FAST LATAM Brings Families and Research Together in Mexico City

FAST at ASGCT 2026

Using Vocalization Testing to Improve Detection of Treatment Effects in Angelman Syndrome Models

FAST's Action Council member, Joe D'Orazio, shares his story with CNBC Cures

Career Development Awards Expand the Next Wave of Angelman Syndrome Research

2026 Congressional Advocacy Day: Recap and Successes

Important update on alogabat, an investigational therapy in development for Angelman syndrome

FAST Poland hosts second nationwide conference, "From Diagnosis to Therapy."

Measuring Communication in Angelman Syndrome to Support Better Trials

Celebrating Dr. David Segal: A Leader in Science and a Champion for Angelman Syndrome Research

International Angelman Day 2026: What Our Community Made Possible

FAST Leaders to Speak at the CNBC Cures Summit on Patient- and Family-Led Advocacy

AS Natural History Study Celebrates 20 Years!

International Angelman Day Bash: Starting Small, Showing Up Big

Hope In Action: Angelman Community Delivers Big Wins in FY26 Fund Bill

Introducing Team Kick-AS, a new way to rally the Angelman syndrome community through running.

A Sister-Led Sip & Shop Turns Jewelry Into Support for FAST

FAST Brings Angelman Syndrome Community Perspective to FDA Rare Disease Roundtable

Update on Rugonersen Development and Planned Phase 3 Study  (BEACON)  

Non-viral delivery gene editing takes an important step forward for Angelman syndrome

FAST LATAM Brings Families and Research Together in Mexico City

FAST at ASGCT 2026

Using Vocalization Testing to Improve Detection of Treatment Effects in Angelman Syndrome Models

FAST's Action Council member, Joe D'Orazio, shares his story with CNBC Cures

Career Development Awards Expand the Next Wave of Angelman Syndrome Research

2026 Congressional Advocacy Day: Recap and Successes

Important update on alogabat, an investigational therapy in development for Angelman syndrome

FAST Poland hosts second nationwide conference, "From Diagnosis to Therapy."

Measuring Communication in Angelman Syndrome to Support Better Trials

Celebrating Dr. David Segal: A Leader in Science and a Champion for Angelman Syndrome Research

International Angelman Day 2026: What Our Community Made Possible

FAST Leaders to Speak at the CNBC Cures Summit on Patient- and Family-Led Advocacy

AS Natural History Study Celebrates 20 Years!

International Angelman Day Bash: Starting Small, Showing Up Big

Hope In Action: Angelman Community Delivers Big Wins in FY26 Fund Bill

Introducing Team Kick-AS, a new way to rally the Angelman syndrome community through running.

Disclaimer

This website contains information for a broad audience and may include information on current and upcoming programs that are not yet approved or accessible The information provided is for general informational purposes only and is not intended as medical advice, diagnosis, or treatment. While FAST strives to provide accurate and up-to-date information, the content on this site may not always reflect the most current research or clinical guidelines. The inclusion of clinical trial information, treatments or specific healthcare providers does not imply endorsement, recommendation or guarantee of safety, efficacy, or availability. Reliance on any information provided by this website is solely at your own risk. FAST disclaims any liability for any errors or omissions in the information provided or for any decisions made based on this information. For personalized medical advice or specific health concerns including participation in any clinical trial, please consult a qualified healthcare professional.