It is with great joy and anticipation that we welcome FAST Germany into our global family.
Formerly known as the Science and Research pillar of Angelman e.V., FAST Germany emerges as a dedicated chapter under FAST Global.
FAST Germany brings a wealth of experience and dedication to FAST’s mission. Angelman ev has over 700 passionate members and a robust presence in esteemed organizations like Eurordis and ASA (Angelman Syndrome Alliance). They are poised to make an immense impact on the global movement for Angelman syndrome advocacy and research.
Together, we embark on a journey filled with hope, determination, and collaboration. FAST Germany's integration into our global network symbolizes a strengthened resolve to accelerate progress towards effective treatments and, ultimately, a cure for Angelman Syndrome.
Evelin Dietrich will serve as the president of FAST Germany and is currently a member of the board of the German Angelman eV organization. For FAST Germany, she will mainly focus on the German Angelman clinic program as she has a huge network in the AS community and AS professionals. Evelin is employed as a business manager in Germany. She holds a master of business development from the university in Dresden. In addition Evelin acts as an active consultant of a pharmaceutical company and a basic research project in AS. Evelin lives in Germany with her husband and their two girls. Their daughter, Lina, lives with Angelman syndrome.
She will be joined by two board members:
Sara Gainey - She has been a paralegal for almost 20 years. She is currently pursuing her Bachelor of Laws / Business Law at IU (International University of Applied Sciences) as well. Sara is the mother of two beautiful daughters Ava and Kayleigh, who lives with Angelman syndrome (Del2). Her role at FAST Germany will be Social Media / Community Engagement.
Denise Braun - She is an electrical engineer, who works for a German distribution network operator and she will be responsible for the website, translation and supporting families. She also works as a consultant for a pharmaceutical company and is a deputy member of the ASA. Her daughter Celina, lives with Angelman syndrome (Del2).
“What FAST has accomplished for our children over the years is truly inspiring. It's an honor to be joining this global movement to better the lives of our loved ones with AS in Germany and around the world. The close exchange with our partners from around the world is another step towards driving the mission forward into the right direction.” - Evelin Dietrich