ASF and FAST are proud to unite in support of crucial legislation impacting our community!
Together, we’ve signed a letter advocating for the Reauthorization of the Rare Pediatric Disease Voucher (PRV) Program, the Medicaid VBPs for Patients Act (MVP Act), and the Accelerating Kids Access to Care Act.
These initiatives are vital for improving care, accelerating access to treatments, and driving progress for individuals with rare diseases like Angelman syndrome.
They support faster approvals for critical therapies, increase care access, and foster innovation in rare disease research—all essential to improving the quality of life for our community.