Angelman Syndrome Blog

Community Letter from Ultragenyx - September 2023

September 2023 Community Letter from Ultragenyx

Ultragenyx Pharmaceuticals (sponsor of the GTX-102, an Antisense oligonucleotide for the potential treatment of Angelman syndrome) has issued a letter to both ASF and FAST providing an

Cornhole for a Cause - with a photo of the hosts posing at the event behind cutouts of children

CAN Spotlight: Cornhole for a Cause

The Granville Angels of Ohio, the Renner and Rees family, are joining forces to support the Angelman syndrome community. On September 16th, they hosted their

Welcome Elizabeth O’Connor! Development Advisor, with a photo of Elizabeth

Q&A with new development advisor Elizabeth O’Connor

We are entering a season full of changes! One of the first is that Elizabeth O’Connor is joining FAST as a development advisor, helping us

New publication supported by FAST and ABOM: Adaptive Skills of Individuals with Angelman Syndrome Assessed Using the Vineland Adaptive Behavior Scales, with an icon of a paper

New publication supported by FAST and ABOM about the Vineland Adaptive Behavior Scales

Here is a summary of a paper recently published out of the Journal of Autism and Developmental Disorders titled “Adaptive Skills of Individuals with Angelman