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2024

December 17th, 2024 newsletter

November 21st, 2024 newsletter

October 29th, 2024 newsletter

October 16th, 2024 newsletter

October 2nd, 2024 newsletter

September 17th, 2024 newsletter

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April 30th, 2024 newsletter

April 17th, 2024 newsletter

April 2nd, 2024 newsletter

March 19th, 2024 newsletter

March 5th, 2024 newsletter

February 21st, 2024 newsletter

February 6th, 2024 newsletter

January 17th, 2024 newsletter

2023

December 19th, 2023 newsletter

December 12th, 2023 newsletter

November 29th, 2023 newsletter

November 22nd, 2023 newsletter

November 15th, 2023 newsletter

November 7th, 2023 newsletter

October 24th, 2023 newsletter

October 18th, 2023 newsletter

October 11, 2023 newsletter

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September 26th, 2023 newsletter

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August 29th, 2023 newsletter

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August 1st, 2023 newsletter

July 25th, 2023 newsletter

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April 25th, 2023 newsletter

April 18th, 2023 newsletter

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March 28th, 2023 newsletter

March 21st, 2023 newsletter

March 14th, 2023 newsletter

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February 28th, 2023 newsletter

February 22nd, 2023 newsletter

February 14th, 2023 newsletter

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January 31st, 2023 newsletter

January 24th, 2023 newsletter

January 18th, 2023 newsletter

January 10th, 2023 newsletter

January 4th, 2023 newsletter

2022

December 20th, 2022 newsletter

December 13th, 2022 newsletter

December 7th, 2022 newsletter

November 30th, 2022 newsletter

November 22nd, 2022 newsletter

November 15th, 2022 newsletter

November 8th, 2022 newsletter

November 1st, 2022 newsletter

October 25th, 2022 newsletter

October 19th, 2022 newsletter

October 11th, 2022 newsletter

October 4th, 2022 newsletter

September 28th, 2022 newsletter

September 21st, 2022 newsletter

September 13th, 2022 newsletter

September 6th, 2022 newsletter

August 31st, 2022 newsletter

August 23rd, 2022 newsletter

August 17th, 2022 newsletter

Angelman Syndrome News

Ultragenyx Announces First Patient(s) Dosed in Pivotal Phase 3 Aspire Study Evaluating GTX-102 in Angel...

FAST Spain Awards First Research Grant

FAST and ASF Advocate for Crucial Legislation

CAN Spotlight: 2nd Annual Hole Out Fore Heath Golf Tournament

CAN Spotlight: Paddle Party for a Purpose

FAST and ASF Announce their Partnership with the Institute for Gene Therapies

RSVP for the January 2025 EL-PFDD Meeting

2024 Global Science Summit Recap

Ionis Pharmaceuticals releases information on their planned phase 3 clinical trial for Angelman syndrome

CAN Spotlight: Remi Cup 2024

The PFDD Survey is now open

Watch the Clinical Trials 101 Video

Watch the ASF | FAST Ultragenyx Community Webinar recording

CAN Spotlight: Bike for Briar’s MEGA Meat Raffle

FAST UK hosts Art for Angelman 2024

CAN Spotlight: All in for Olin Fundraiser

CAN Spotlight: Friends of James Oktoberfest

Ultragenyx Community Update October 2024

CAN Spotlight: Maddie's Mission 3rd Annual Block Party Tailgate

CAN Spotlight: 100 mile Coast to Coast Triathlon for Angelman Syndrome

Ultragenyx Announces First Patient(s) Dosed in Pivotal Phase 3 Aspire Study Evaluating GTX-102 in Angel...

FAST Spain Awards First Research Grant

FAST and ASF Advocate for Crucial Legislation

CAN Spotlight: 2nd Annual Hole Out Fore Heath Golf Tournament

CAN Spotlight: Paddle Party for a Purpose

FAST and ASF Announce their Partnership with the Institute for Gene Therapies

RSVP for the January 2025 EL-PFDD Meeting

2024 Global Science Summit Recap

Ionis Pharmaceuticals releases information on their planned phase 3 clinical trial for Angelman syndrome

CAN Spotlight: Remi Cup 2024

The PFDD Survey is now open

Watch the Clinical Trials 101 Video

Watch the ASF | FAST Ultragenyx Community Webinar recording

CAN Spotlight: Bike for Briar’s MEGA Meat Raffle

FAST UK hosts Art for Angelman 2024

CAN Spotlight: All in for Olin Fundraiser

CAN Spotlight: Friends of James Oktoberfest

Ultragenyx Community Update October 2024

CAN Spotlight: Maddie's Mission 3rd Annual Block Party Tailgate

CAN Spotlight: 100 mile Coast to Coast Triathlon for Angelman Syndrome

Disclaimer

This website contains information for a broad audience and may include information on current and upcoming programs that are not yet approved or accessible The information provided is for general informational purposes only and is not intended as medical advice, diagnosis, or treatment. While FAST strives to provide accurate and up-to-date information, the content on this site may not always reflect the most current research or clinical guidelines. The inclusion of clinical trial information, treatments or specific healthcare providers does not imply endorsement, recommendation or guarantee of safety, efficacy, or availability. Reliance on any information provided by this website is solely at your own risk. FAST disclaims any liability for any errors or omissions in the information provided or for any decisions made based on this information. For personalized medical advice or specific health concerns including participation in any clinical trial, please consult a qualified healthcare professional.