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Ultragenyx Responds to Roche Updates

FAST's Annual Summit & Gala

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2022 FAST Global Summit & Gala

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FAST’s Global Science Summit and Gala, which took place on December 2-3, 2022 in Miami, Florida, featured over 20 presentations from researchers, clinicians and pharmaceutical companies. FAST brought together community members from all over the world with dozens of research partners and pharmaceutical companies joining the Summit & Gala events. In addition, the Science Summit presentations were live-streamed in multiple languages with people tuning in from 29 different countries!

The hybrid event featured updates on the latest Angelman syndrome research and clinical trials from the top scientists and industry leaders, as well as helpful vendors that provided Angelman families with goods and services to support their loved ones living with Angelman syndrome. The Global Science Summit and Gala shared a unique look at FAST’s future-focused mission to find effective therapeutics for all individuals living with Angelman syndrome. To watch recorded presentations from the 2022 FAST Global Science Summit and Gala, please click here.

2022 Dream Big Gala Video

https://youtu.be/JYNgu7FBQvs

Thank you to everyone that participated in the event and contributed to raise a record amount of money to accelerate our mission. You can learn more about FAST online, sign up for our newsletter and contribute to our mission. We appreciate the continued support from our global community.

Keder Solutions Ovid Therapeutics Ultragenix PTC Therapeutics Quincy's Quest Biogen Ionis Pharma Texas Children’s Neuren Pharmaceuticals Safety Sleeper Ulysses Roche Genentech

Fireside Chats

Fireside chats are conducted monthly by zoom, and will often feature special guests. All participants need to register in advance. We ask that participants refrain from recording or taking screenshots, or sharing publicly what is shared by other audience members. Notes are taken at each event, and are published on the FAST's website the following week, as a record for those who could not attend. Thank you, and please join us!

Next fireside chat:

Events Calendar

Check out all of the events happening in the community. If you are hosting a fundraising event, submit the information below.

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Resources

Newly DiagnosedCure Angelman NowAS Fact Card
Getting this diagnosis is extremely overwhelming. The Angelman syndrome community is full of strong and supportive families who are here to help. Take your time, educate yourself, connect, and leverage the services available to you. Learn More Learn More
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help! Start Fundraising Start Fundraising
Start Fundraising Start Fundraising
Educating our community, family, and friends about Angelman syndrome is an important responsibility. Let’s make raising awareness and funds easy and fun! You’re invited to create a custom AS Fact Card. Create My AS Fact Card Create My AS Fact Card
Cure Angelman Now
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help! Start Fundraising Start Fundraising
Start Fundraising Start Fundraising
AS Fact Card
Educating our community, family, and friends about Angelman syndrome is an important responsibility. Let’s make raising awareness and funds easy and fun! You’re invited to create a custom AS Fact Card. Create My AS Fact Card Create My AS Fact Card
Newly Diagnosed
Getting this diagnosis is extremely overwhelming. The Angelman syndrome community is full of strong and supportive families who are here to help. Take your time, educate yourself, connect, and leverage the services available to you. Learn More Learn More

Disclaimer

This website contains information for a broad audience and may include information on current and upcoming programs that are not yet approved or accessible The information provided is for general informational purposes only and is not intended as medical advice, diagnosis, or treatment. While FAST strives to provide accurate and up-to-date information, the content on this site may not always reflect the most current research or clinical guidelines. The inclusion of clinical trial information, treatments or specific healthcare providers does not imply endorsement, recommendation or guarantee of safety, efficacy, or availability. Reliance on any information provided by this website is solely at your own risk. FAST disclaims any liability for any errors or omissions in the information provided or for any decisions made based on this information. For personalized medical advice or specific health concerns including participation in any clinical trial, please consult a qualified healthcare professional.