News & Events

Foundation Updates

Research Updates

Learn more about the ORCA Measure, with the Duke University School of Medicine logo and the ORCA (Observer-Reported Communication Ability Measure) logo

Learn more about the ORCA measure

This week we are highlighting two newly published, FAST-funded publications on the Observer-Reported Communication Ability (ORCA) measure for individuals living with Angelman syndrome. Communication is

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2022 FAST Global Summit & Gala

FAST’s Global Science Summit and Gala, which took place on December 2-3, 2022 in Miami, Florida, featured over 20 presentations from researchers, clinicians and pharmaceutical companies. FAST brought together community members from all over the world with dozens of research partners and pharmaceutical companies joining the Summit & Gala events. In addition, the Science Summit presentations were live-streamed in multiple languages with people tuning in from 29 different countries!

The hybrid event featured updates on the latest Angelman syndrome research and clinical trials from the top scientists and industry leaders, as well as helpful vendors that provided Angelman families with goods and services to support their loved ones living with Angelman syndrome. The Global Science Summit and Gala shared a unique look at FAST’s future-focused mission to find effective therapeutics for all individuals living with Angelman syndrome. To watch recorded presentations from the 2022 FAST Global Science Summit and Gala, please click here.

2022 Dream Big Gala Video

DreamBIG
Play Video

Thank you to everyone that participated in the event and contributed to raise a record amount of money to accelerate our mission. You can learn more about FAST online, sign up for our newsletter and contribute to our mission. We appreciate the continued support from our global community.

Fireside Chats

Fireside chats are conducted monthly by zoom, and will often feature special guests. All participants need to register in advance. We ask that participants refrain from recording or taking screenshots, or sharing publicly what is shared by other audience members. Notes are taken at each event, and are published on the FAST’s website the following week, as a record for those who could not attend. Thank you, and please join us!

FAST fireside chat website

Next fireside chat:

June 4th at 12pm ET

Events Calendar

Check out all of the events happening in the community. If you are hosting a fundraising event, submit the information below.

20jun8:30 PMGenes & JuiceJoin Allyson Berent & Jennifer Panagoulias for a series of intimate chats about all things related to gene and disease modifying therapies.

24jun9:00 AMGo Go Gus Golf Touranment2nd Annual Go Gus Golf Golf tournament

13julAll DayLinks for Louie Golf Tournament5th Annual Links for Louie Golf tournament

28julAll DayJames CAN Golf Outing2nd Annual James CAN Golf Outing

29jul11:30 AMHendu’s Golf Classic6th Annual Hendu’s Golf Classic

29jul12:00 PMPayslie’s Pals Cornhole Tournament2nd Annual Payslie’s Pals Cornhole Tournament

05aug8:00 AMHarper’s Hope Golf Touranment3rd Annual Harper’s Hope Annual Golf Tournament

07aug8:30 AMJoe’s Charity Golf Outing3rd Annual Joe’s Charity Golf Outing

11aug8:00 AMChari-Tee Golf Tournament3rd Annual Charlie’s Angels Chari-Tee Golf Tournament

15aug6:00 PMIf Will Can, We CAN Event1st Annual If Will CAN, We CAN Event

10sepAll DayMaddie’s Mission Block Party2nd Annual Maddie’s Mission Block Party

01octAll DayRemi Cup2nd Annual Remi Cup

15oct11:00 AMWill.i.CAN Bowling Event3rd Annual Will.i.CAN Bowling

28octAll DayCostumes for a Cure2nd Annual Costumes for a Cure

Resources

can3.1.21
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!
can3.1.21
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!
Educating our community, family, and friends about Angelman syndrome is an important responsibility. Let’s make raising awareness and funds easy and fun! You’re invited to create a custom AS Fact Card.
Getting this diagnosis is extremely overwhelming. The Angelman syndrome community is full of strong and supportive families who are here to help. Take your time, educate yourself, connect, and leverage the services available to you.