More good news! This month we welcome a new board member to FAST: Mike Hanrahan. Mike and his wife, Jo, have been vital and beloved
When I joined the team as the president of FAST, I told everyone that I wanted the community to know the staff and be able
Pillar 2 of the FAST Roadmap to a Cure 2.0 consists of therapeutic programs that focus on “turning on dad’s gene” by activating the silent
This week we are going to continue with the focus on FAST’s 4 Pillars in the Roadmap to a Cure 2.0, highlighting Pillar 2 –
FAST’s Global Science Summit and Gala, which took place on December 3rd – 4th 2021 in Austin, Texas, featured over 20 presentations from researchers, clinicians and pharmaceutical companies. FAST brought together 1,555 community members from all over the world (661 in-person and 894 virtual), with 37 research partners and 28 pharmaceutical companies joining the Summit & Gala events. In addition, the Science Summit presentations were live-streamed in 15 languages with people tuning in from 38 different countries!
The hybrid event featured updates on the latest Angelman syndrome research and clinical trials from the top scientists and industry leaders, educational workshops for caregivers, therapists, and teachers, and helpful vendors that provided Angelman families with goods and services to support their loved ones living with Angelman syndrome. The Global Science Summit and Gala shared a unique look at FAST’s future-focused mission to find effective therapeutics for all individuals living with Angelman syndrome. For a quick recap of the event, please visit: FAST Highlights Research Advancements at 2021 Global Science Summit and Gala.
Thank you to everyone that participated in the event and contributed to raise a record amount of money to accelerate our mission. You can learn more about FAST online, sign up for our newsletter and contribute to our mission. We appreciate the continued support from our global community.
Fireside chats are conducted monthly by zoom, and will often feature special guests. All participants need to register in advance. We ask that participants refrain from recording or taking screenshots, or sharing publicly what is shared by other audience members. Notes are taken at each event, and are published on the FAST’s website the following week, as a record for those who could not attend. Thank you, and please join us!
We are interested in learning more about your event! For all upcoming events, please complete the event form linked in the button below. If you’ve already hosted an event, share your story with us HERE.
