Foundation Updates

covid 19 Foundation Updates

FAST update on the impact of Covid-19

While the world as we know it has changed, abruptly and dramatically, we at FAST want you to know that we are here and we continue to move forward in our mis

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davis Foundation Updates

FAST funds pioneering infrastructure grant

FAST is thrilled to announce a grant to our continued partners and renowned scientists dedicated to advancing therapeutics for Angelman syndrome.

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Research Updates

AUG Science Posts Research

The ORCA (Observer-Reported Communication Ability) outcome measure

In 2018, FAST funded Dr. Bryce Reeve of Duke University to create a novel communication measurement tool as an outcome measure assessment of caregiver observ

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j silverman Research

FAST Awards Drs. Silverman (UC-Davis) and Duis (Children’s Hospital Colorado) Grant to Study Gait as an Outcome Measure for Angelman Syndrome

Movement disorders affect nearly all individuals with Angelman syndrome (AS), with the most common concerns being spasticity, ataxia (as observed in the majo

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2020 Virtual Summit & Mini-Gala

The 2020 FAST Global Virtual Summit & mini-Gala, Virtually Unstoppable, was a truly incredible virtual experience that took place December 4-5, 2020. Over 1,700 people from 61 countries around the world joined in the two-day virtual event. FAST’s amazing community raised $2.2 million in pursuit of the mission to #CureAngelmanNow. Catch up on 2020’s best moments, announcements, and sessions below. We look forward to being together again in 2021 – Save the Date: December 3-4, 2021.

Events Calendar

15febAll DayInternational Angelman Day

28febAll DayRare Disease Day

03dec6:00 PM9:00 PM2021 FAST Global Summit & Gala

Resources 

  • Newly Diagnosed
  • Cure Angelman Now
  • AS Fact Card

Getting this diagnosis is extremely overwhelming. The Angelman syndrome community is full of strong and supportive families who are here to help. Take your time, educate yourself, connect, and leverage the services available to you.

As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!

Educating our community, family, and friends about Angelman syndrome is an important responsibility. Let’s make raising awareness and funds easy and fun! You’re invited to create a custom AS Fact Card.

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