News & Events

Foundation Updates

Grace Laugh 1

Meet John Schlueter

In 2013 my amazing daughter, Grace, was born.  She was perfect in every way.  She had beautiful blue eyes, blonde hair, and a smile that

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Research Updates

iad

International Angelman Day: February 15

International Angelman Day (IAD) is an opportunity to raise awareness of Angelman syndrome on a global scale! Two AS parents started IAD in 2012 and engaged 31 Angelman syndrome organizations from around the world to join their efforts. Today, IAD has grown to over 50 AS organizations participating worldwide! 
 
February 15th is significant because February is Rare Disease Month and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman syndrome.
The purpose of this day is to:
  • Raise awareness worldwide of the condition;
  • Mobilize people to action & encourage fundraising for the individual organization in their country;
  • Promote research and educational resources in the organization’s own country; and
  • Remember those people with Angelman syndrome who are no longer with us.  From angelmanday.info

IAD is an opportunity to raise awareness and raise funds towards a cure for Angelman syndrome. FAST has made that easier by providing a few resources:

Download & Personalize

Your IAD Flyer

Upload the FAST IAD

Facebook Frame

Download the International

Angelman Organization Flyer

2020 Virtual Summit & Mini-Gala

The 2020 FAST Global Virtual Summit & mini-Gala, Virtually Unstoppable, was a truly incredible virtual experience that took place December 4-5, 2020. Over 1,700 people from 61 countries around the world joined in the two-day virtual event. FAST’s amazing community raised $2.2 million in pursuit of the mission to #CureAngelmanNow. Catch up on 2020’s best moments, announcements, and sessions below. We look forward to being together again in 2021 – Save the Date: December 3-4, 2021.

Events Calendar

01febAll Day31marChateau Elan Winery Fundraiser

03dec6:00 PM9:00 PM2021 FAST Global Summit & Gala

Resources

can3.1.21
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!
can3.1.21
As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to all individuals with Angelman syndrome, but we need your help!
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