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Moments of Hope

A collection of hope by parents and caregivers.

Read inspiring moments shared by the community of a distinct experience with their loved one living with AS that gave them hope and energy to fight for a cure.

Angelman Syndrome News

A new publication represents a possible small-molecule approach to potentially treat the synaptic dysfu...

CAN Spotlight: Payslie’s Pals 3rd Annual Cornhole Tournament Fundraiser

CAN Spotlight: Angels Within Us Charity Concert

Ionis announces positive detailed results from the HALOS Study of ION582 in people with Angelman syndrome

David Gurzick represents FAST and the A-BOM at the 4th Chief Patient Officer’s Summit

Ultragenyx Announces Successful End-of-Phase 2 Meeting with FDA for GTX-102 Angelman Syndrome Program

FAST LatAm holds inaugural Angelman Syndrome Congress in Bogotá

CAN Spotlight: Go Gus Go’s 3rd Annual Golf Event

ASF & FAST Advocate for Caregivers

ASF and FAST ask the FDA to establish a Rare Disease Center of Excellence

Annual Parent Meeting of the Angelman Verein and FAST Germany

Our Chief Operating Officer joins the White House Clinical Trials Forum

FAST invited by the FDA to join advocacy-based panel discussion

CAN Spotlight: Harper's Hope Golf Scramble

Introducing Dr. Edwin Weeber

INSYNC 2024 Round-Up

FAST announces establishment of associated drug development accelerator AS²Bio

FAST France - Eye Study

CAN Spotlight: Kettlebells for Kayleigh

FAST presents at the MENA Congress for Rare Diseases Angelman Symposium

A new publication represents a possible small-molecule approach to potentially treat the synaptic dysfu...

CAN Spotlight: Payslie’s Pals 3rd Annual Cornhole Tournament Fundraiser

CAN Spotlight: Angels Within Us Charity Concert

Ionis announces positive detailed results from the HALOS Study of ION582 in people with Angelman syndrome

David Gurzick represents FAST and the A-BOM at the 4th Chief Patient Officer’s Summit

Ultragenyx Announces Successful End-of-Phase 2 Meeting with FDA for GTX-102 Angelman Syndrome Program

FAST LatAm holds inaugural Angelman Syndrome Congress in Bogotá

CAN Spotlight: Go Gus Go’s 3rd Annual Golf Event

ASF & FAST Advocate for Caregivers

ASF and FAST ask the FDA to establish a Rare Disease Center of Excellence

Annual Parent Meeting of the Angelman Verein and FAST Germany

Our Chief Operating Officer joins the White House Clinical Trials Forum

FAST invited by the FDA to join advocacy-based panel discussion

CAN Spotlight: Harper's Hope Golf Scramble

Introducing Dr. Edwin Weeber

INSYNC 2024 Round-Up

FAST announces establishment of associated drug development accelerator AS²Bio

FAST France - Eye Study

CAN Spotlight: Kettlebells for Kayleigh

FAST presents at the MENA Congress for Rare Diseases Angelman Symposium