Dear Newly Diagnosed Parent,
I had never heard of that before diagnosis day.
Orion is 5, and he has five spoken words. He uses his voice and gestures to communicate. He also uses his AAC (augmentative and alternative communication) device, which is not his preference, however, his language continues to grow and his communication abilities are maturing.
Orion started walking at 19 months. He started running at 3 years old. He is now 5 years old and he is able to safely navigate our treacherous stairs unassisted, alternating his feet going up and coming down. He is also doing wheelbarrow, walking on his hands, up those same steep stairs, which would be hard for any 5 year old to do!
Orion understands everything, responds appropriately when he wants, and continues to amuse us with his wit, intelligence and charm.
We have seizures under control thanks to neurofeedback and the Low Glycemic Index Treatment diet.
He is always finding creative solutions to problems. I think he may be an engineer … or a male model because he is incredibly handsome!
He was potty trained at 2 years old. I know many neurotypical boys who aren’t potty trained at that age.
That is already not true.
Amelia, an Angelman parent just like you