FAST and ASF partner to advance the awareness and treatment of Angelman syndrome through legislative advocacy
Downers Grove, Ill./Aurora, Ill. (April 16, 2021) — FAST, the Foundation for Angelman Syndrome Therapeutics, and ASF, the Angelman Syndrome Foundation, announce a collaboration for a legislative working group focused on furthering the awareness and treatment of Angelman syndrome through legislative advocacy. The legislative working group will continue to work with the Everylife Foundation and focus on three critical rare disease initiatives, including Speeding Therapy Access Today (STAT) Act, Newborn Screening Saves Lives Reauthorization Act and the Rare Disease Congressional Caucus.
FAST and ASF will further champion the overall mission of advancing the treatment of Angelman syndrome through education, research and support for individuals with Angelman syndrome.
“FAST is pleased to partner with the Angelman Syndrome Foundation to further governmental outreach,” said Lauren Hoffer, director for the FAST Board of Directors. “Together, we will drive policies that fund Angelman syndrome medical treatments and research; meanwhile, improving the lives of our loved ones. FAST and ASF are stronger together.”
Amanda Moore, chief executive officer for ASF added, “We are thrilled to collaborate with FAST to improve policies and systems that will positively affect the Angelman community. By working together on these vital issues, it will amplify our voices and make a lasting impact for current and future generations.”