Spread Your Wings, a United Kingdom charity created by Alex & Jenny Vainella (parents to Leo who lives with Angelman syndrome) and friend Clare Hegarty, celebrated their launch gala this past weekend in London with members of their local community and some of the Angelman community. The memorable night was full of dancing, learning, crying, and celebrating. Over 400 guests joined the gala to raise awareness of Angelman syndrome and funds, the majority of which will be directed toward the FAST UK Natural History Study at Oxford.
"We initially decided to do a Gala as a fundraiser to launch our new charity, but what we got from it was so much more than money. Through speeches and videos, we exposed our life at the most vulnerable of times, which was incredibly hard to do. By doing so, it feels like we have brought everyone closer into our lives. The impact it has had is completely overwhelming and the love in that room was palpable. I know it will carry Alex and I through the challenges ahead."
– Jenny Vainella
Thank you Jenny, Alex & Clare and all of Spread Your Wings for your dedication to Angelman syndrome and the FAST mission!