University of Pittsburgh School of Medicine’s REAACT Program has launched online data collection for Dr. Mazefsky’s Adult Functioning Scale (AFS) study, funded by both Autism Speaks and National Institutes of Health (NIH).
The purpose of this research study is to develop a new survey tool to measure functional outcomes in autistic adults and adults with other developmental disabilities (DD), such as Down, Fragile X, Prader-Willi, and Williams syndromes, in an effort to better inform future policies to support the successful transition to adulthood for this population.
The objective of this project is to develop efficient measures of functional outcome for affected adults in the domains of employment, independent living, and relationships.
This exclusively online study is enrolling both individuals age 18+ with DDs and caregivers of individuals age 18+ with DDs who are US residents. Each individual who completes the surveys will receive an $80 Amazon e-gift card for their efforts. There is a potential for an additional $20 compensation, as a small random subset of individuals who complete the first set of surveys will be invited to complete one additional survey four weeks later. We are accepting autistic participants and their caregivers, though we have met our recruitment targets and are particularly in need of adults with other developmental disabilities and their caregivers.
For more info, email AFSstudy@upmc.edu or call 412-260-6593.