Register for the Global Angelman Syndrome Registry
When we view our children solely through the lens of a clinic, we see only a fraction of their true selves. Since they cannot express themselves through words, it becomes our responsibility to be their voice and share their daily experiences with the world. By doing so, we can drive the necessary changes to improve their lives effectively.
The Global Angelman Syndrome Registry (GASR) is where we collect and collate data on individuals diagnosed with AS worldwide. Parents and caregivers drive data collection by contributing information on diagnosis, medical history, development, and more in a series of online modules.
Join the registry now and be a part of a transformative movement where your data becomes a powerful agent of change, paving the way for groundbreaking research and improved understanding of AS. Together, we can unlock vital insights, accelerate progress, and ultimately shape a brighter future for our loved ones. Don't wait; your contribution matters, and every entry counts in our shared mission to make a difference and create a world of hope and possibilities for individuals with AS.