The Foundation for Angelman Syndrome Therapeutics (“FAST”) is committed to safeguarding your privacy and personal data. FAST will not sell, trade or share a donor's personal information with anyone else, nor send donor mailings on behalf of other organizations. FAST will only share personal information once the donor has given specific permission to do so. The Donor Bill of Rights was created by the Association of Fundraising Professionals (AFP), the Association for Healthcare Philanthropy (AHP), the Council for Advancement and Support of Education (CASE), and the Giving Institute: Leading Consultants to Non-Profits. It has been endorsed by numerous organizations. The Donor Bill of Rights Philanthropy is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To assure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the not-for-profit organizations and causes they are asked to support, we declare that all donors have these rights:
- To be informed of the organization's mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes.
- To be informed of the identity of those serving on the organization's governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities.
- To have access to the organization's most recent financial statements.
- To be assured their gifts will be used for the purposes for which they were given.
- To receive appropriate acknowledgement and recognition.
- To be assured that information about their donation is handled with respect and with confidentiality to the extent provided by law.
- To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.
- To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.
- To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share.
- To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.
- Personal information such as name, email address, mailing address and personal connection to Angelman syndrome that you directly submit to us as part of a registration, participation, survey or donation form, as well as through other digital and non-digital interfaces and platforms, such as e-mail and social media.
- Transactional data including personal and credit card information, through secure purchases or donations submitted on our financial transaction pages. This information is used to acknowledge receipt of your donation for tax purposes and to include you on the FAST's mailing list, if you choose to opt in. When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual, we will use the name and address of that individual for acknowledgement purposes only.
- Provide you relevant and timely information about our programs and services;
- Carry out your request or transaction;
- Analyze trends in user behavior;
- Optimize the performance of our website; and
- For purposes that you have consented to.