Meghan Edberg | March 28, 2022
Hi FAST Community!
This last weekend, I had the privilege to travel to Northern California to tour the UC Davis Labs and local vineyards with other AS families and the FAST Board. We spent one day seeing the science with our own eyes and all the complexities that go into the cure for our loved ones. I’m sure there are varying levels of interest and understanding when it comes to the science behind a cure for Angelman syndrome. As an AS momma who knows enough to be a little dangerous yet easily gets lost when the scientific jargon starts to get beyond me (which doesn’t take much), I’d explain things like this:
On the other day, we spent time with each other while tasting Napa’s finest. We got to know each other as humans, talked about our AS kiddos and experiences, and how we do our individual parts to support FAST towards a cure. I learned so much from everyone and left the weekend feeling charged up and motivated to #KickAS!
It takes a village (Families, FAST, Science) and a vineyard (being together to support each other, learn from each other, and celebrate us living the AS life)!
We had our fun, now it’s time to work!
#ChopChop – We are called FAST for a reason!