Outcome Measurement Assessment in Communication for Patients with Angelman Syndrome

This grant was funded for Dr. Bryce Reeve at Duke University, an expert in clinical outcome measure development.  The goal is to define and label the construct to measure caregiver observations in their child’s ability for expressive, receptive and pragmatic communication and ultimately develop a measurement tool that can be used pre-competitively in human clinical trials to measure a patient’s ability to communicate.