For Jack: Sonia and Jose Take on the Inca Trail
Before Sonia and her son José set off on Peru’s Inca Trail this September, their guides gave the group two goals: survive first, and finish if you can. For Sonia and José, finishing mattered. They were hiking in honor of Jack, Sonia’s son, who lives with Angelman syndrome, and raising money for research through FAST’s […]
The Spark That Brought a Community Together
The first-ever Chloe’s Spark Golf Scramble in Minnesota raised over $55,000, bringing together family and friends to celebrate Chloe’s joy and support Angelman syndrome research.
From Backyard Cornhole to Big Impact: For the Love of Linc
In its first year, the Ciotola family’s cornhole tournament, For the Love of Linc, raised more than $8,000 for Angelman syndrome, turning backyard fun into community impact.
Dream Big: One Family’s Journey from the Altar to the Start Line
Thomas and Johanna Kennedy turned their daughter Anabella’s Angelman syndrome diagnosis into a movement—weaving advocacy into their wedding and now running the Dublin Marathon for a cure.
46 Days. 14 States. 2,725 Miles. One Reason: Briar.
Charlie Nuck rode from Maine to Key West—alone and self-contained—raising over $65,000 for Angelman syndrome research in honor of his niece Briar, one conversation and one mile at a time.
Introducing Team Kick-AS, a new way to rally the Angelman syndrome community through running.
Team Kick-AS is running four marathons across four countries this fall—Dublin, Venice, Valencia, and Honolulu—with every mile raising funds for Angelman syndrome research.
CAN Spotlight: Paddle Party for a Purpose
The 2nd Annual Paddle Party for a Purpose sold out at Exmoor Country Club, with Team Ryan O’Connor raising money and awareness for Angelman syndrome through paddle, dinner, and live music.
CAN Spotlight: 2nd Annual Hole Out Fore Heath Golf Tournament
The Second Annual Hole Out Fore Heath Golf Tournament brought together 120 golfers in Florida, raising funds for Angelman syndrome research alongside a silent auction and raffles.
CAN Spotlight: Remi Cup 2024
In its 3rd year, the Remi Cup golf tournament drew 104 golfers to Oklahoma, raising over $30,000 for FAST as the Matheson family continues advocating for daughter Remi.