When Michael and Ashley Scerbo learned that their daughter, Emma, had Angelman syndrome, they knew they wanted to do something to help advance research. They had never organized a fundraiser before, but they weren’t going to let that stop them.
After attending the FAST Global Science Summit and Gala and learning about the investigational therapies in development, they were inspired to contribute to that progress. They created Emma’s Wish Foundation and began planning their first event, Light the Night for Emma’s Wish.
Friends, family, neighbors, and even strangers rallied around Emma. Before the event, neighborhood children hosted a lemonade stand in her honor, raising more than $2,000 in just a few hours. Even more meaningful was the opportunity for children to meet Emma, ask questions about Angelman syndrome, and get to know her.
“They were really getting to know her, and Emma was loving all the attention,” her parents recalled.
That generosity continued at Light the Night, where supporters helped raise more than $80,000.
“We had people from all stages of our lives there, even strangers we never met before, all to support Emma and the future we dream of for her,” Michael and Ashley shared.
For the Scerbos, the evening represented far more than a fundraising milestone. It was a reminder of what their community could accomplish together and the difference they could make for individuals living with Angelman syndrome.
And they’re just getting started. This holiday season, Emma’s Wish is partnering with Pier One Tree in Hoboken, New Jersey, where letters dropped into a special Santa mailbox will generate donations to support their mission.
For other families considering fundraising, Michael and Ashley have simple advice: “It is intimidating! Just do it!”
They know firsthand that getting started can feel overwhelming. In fact, they postponed their own event for a year, only to realize they weren’t any more prepared. But they learned along the way, found support, and discovered what was possible.
Their message to other families captures the spirit behind Emma’s Wish:
“Your why can become their hope.”