For Jack: Sonia and Jose Take on the Inca Trail
Before Sonia and her son José set off on Peru’s Inca Trail this September, their guides gave the group two goals: survive first, and finish if you can. For Sonia and José, finishing mattered. They were hiking in honor of Jack, Sonia’s son, who lives with Angelman syndrome, and raising money for research through FAST’s […]
The Spark That Brought a Community Together
The first-ever Chloe’s Spark Golf Scramble in Minnesota raised over $55,000, bringing together family and friends to celebrate Chloe’s joy and support Angelman syndrome research.
From Backyard Cornhole to Big Impact: For the Love of Linc
In its first year, the Ciotola family’s cornhole tournament, For the Love of Linc, raised more than $8,000 for Angelman syndrome, turning backyard fun into community impact.
Charlie’s Angels Chari-Tee Golf Tournament: A Day of Hope, Community, and Action
In its 5th year, Charlie’s Angels Chari-Tee Golf Tournament raised over $90,000 in a single day, bringing its total to nearly $300,000 for Angelman syndrome research.
The LaMuras organized Rally for a Cure, a Tennis-Themed Event that Brought Together Their Community
Monica LaMura’s first-ever fundraiser, Rally for a Cure, brought nearly 50 kids together for a tennis-themed event, raising $5,000 for FAST in honor of her son Colin.
46 Days. 14 States. 2,725 Miles. One Reason: Briar.
Charlie Nuck rode from Maine to Key West—alone and self-contained—raising over $65,000 for Angelman syndrome research in honor of his niece Briar, one conversation and one mile at a time.
A Sister-Led Sip & Shop Turns Jewelry Into Support for FAST
Sisters Amelia and Victoria turned their love of travel and design into a Sip & Shop jewelry event, raising over $4,000 for FAST in honor of Amelia’s son Orion.
International Angelman Day Bash: Starting Small, Showing Up Big
From a school bake sale to ‘Pinball with a Purpose,’ Beth Phillips Synk turned nerves into action, raising over $34,000 for FAST in honor of her daughter Immy.
Introducing Team Kick-AS, a new way to rally the Angelman syndrome community through running.
Team Kick-AS is running four marathons across four countries this fall—Dublin, Venice, Valencia, and Honolulu—with every mile raising funds for Angelman syndrome research.
How Heath’s Heroes Keep Turning a Day on the Course Into Research Progress
The Hoffman family’s third annual ‘Hole Out Fore Heath’ golf tournament raised $24,000 for Angelman syndrome research, bringing their cumulative total to over $70,000.