Progress for Angelman Syndrome Relies on a Strong NIH and FDA
Angelman syndrome research is at a turning point, and federal cuts could put that progress at risk. FAST and ASF are urging congressional leaders to protect the NIH and FDA expertise that helps move treatments safely to families.
The Economic Burden of Caring for Individuals with Angelman Syndrome
Angelman syndrome affects entire families: a new study estimates caregiving costs nearly $80,000 per household each year, underscoring the urgent need for stronger supports, services, and meaningful treatments.
2025 AS Congressional Advocacy Day: Legislative Priorities
Ahead of the second Angelman Syndrome Advocacy Day, FAST and ASF outline key 2025 priorities: protecting NIH research funding, safeguarding Medicaid, and supporting caregiver legislation.