Spring Advocacy Update: Educating, Advocating, and Building Momentum
A productive spring for Hope in Action: all Angelman syndrome priorities included in House FY27 appropriations reports, plus a new DOD grant opportunity now open thanks to your advocacy.
2026 Congressional Advocacy Day: Recap and Successes
138 advocates from 37 states held 139 congressional meetings this year, doubling House letter sign-ons and pushing key Angelman syndrome priorities forward in FY27 appropriations.
Hope In Action: Angelman Community Delivers Big Wins in FY26 Fund Bill
Congress passed FY26 appropriations with all three Angelman syndrome priorities intact, unlocking $370 million in DOD research funding and advancing key FDA and NIH commitments.
February 2025: Advocacy updates and actions to take
Despite the postponement of the EL-PFDD meeting, FAST and ASF continue joint advocacy work, from Congressional Advocacy Day to new toolkits and a rare disease policy letter to the administration.