FAST LATAM Brings Families and Research Together in Mexico City
The second FAST LATAM Conference in Mexico City drew 267 in-person and nearly 496 virtual attendees, uniting families across the region around research updates and shared hope.
A Sister-Led Sip & Shop Turns Jewelry Into Support for FAST
Sisters Amelia and Victoria turned their love of travel and design into a Sip & Shop jewelry event, raising over $4,000 for FAST in honor of Amelia’s son Orion.
International Angelman Day 2026: What Our Community Made Possible
International Angelman Day 2026 lit up landmarks worldwide, sparked local news coverage, and united families in social media storytelling to raise awareness for Angelman syndrome.
International Angelman Day Bash: Starting Small, Showing Up Big
From a school bake sale to ‘Pinball with a Purpose,’ Beth Phillips Synk turned nerves into action, raising over $34,000 for FAST in honor of her daughter Immy.
How One Night of Paddle Is Powering Angelman Syndrome Research
The O’Connor family’s Paddle Party for a Purpose raised over $72,000 for Angelman syndrome research—more than doubling last year’s total for son Ryan and families everywhere.
Trips for Tripp: A One-of-a-Kind Fundraiser With a Clear Goal
With a donated South Texas hunt drawing, Ally and Jared Seago raised over $16,600 for FAST—turning a personal connection into meaningful support for son Tripp and Angelman research.
Voice of the Patient Report Submitted: A Powerful Milestone for the Angelman Syndrome Community
The Voice of the Patient Report from the Angelman syndrome EL-PFDD Meeting has been submitted to the FDA, capturing families’ lived experiences to help drive meaningful treatments forward.”
International Angelman Day 2025: Round-Up
The global Angelman syndrome community celebrated International Angelman Day through blue illuminations, educational presentations, school activities, and outreach campaigns to raise awareness.
2024 Global Science Summit Recap
The 17th Global Science Summit gathered over 1,000 attendees from 55 countries, spotlighting major progress across FAST’s research pillars and multiple advancing clinical trials.
The PFDD Survey is now open
The EL-PFDD Survey is now open, inviting parents and caregivers to share their experiences with Angelman syndrome to help shape the January 2025 FDA discussion.