FAST’s Action Council member, Joe D’Orazio, shares his story with CNBC Cures
When an ER physician’s son was diagnosed with Angelman syndrome, he learned what no medical training could teach: how grief, exhaustion, and love reshape a family—and a career.
FAST Leaders to Speak at the CNBC Cures Summit on Patient- and Family-Led Advocacy
FAST joins the inaugural CNBC Cures Summit as the only patient advocacy org on stage, spotlighting how family-led models are accelerating rare disease drug development.