Dream Big: One Family’s Journey from the Altar to the Start Line
Thomas and Johanna Kennedy turned their daughter Anabella’s Angelman syndrome diagnosis into a movement—weaving advocacy into their wedding and now running the Dublin Marathon for a cure.
46 Days. 14 States. 2,725 Miles. One Reason: Briar.
Charlie Nuck rode from Maine to Key West—alone and self-contained—raising over $65,000 for Angelman syndrome research in honor of his niece Briar, one conversation and one mile at a time.
FAST Poland hosts second nationwide conference, “From Diagnosis to Therapy.”
FAST Poland’s second national conference, ‘Between Dreams and Reality,’ drew 134 participants to explore diagnosis, therapy access, and education for the Angelman syndrome community.
International Angelman Day 2026: What Our Community Made Possible
International Angelman Day 2026 lit up landmarks worldwide, sparked local news coverage, and united families in social media storytelling to raise awareness for Angelman syndrome.
A Home Court for Hope: Drexel Women’s Basketball Champions Angelman Syndrome Awareness
Drexel Women’s Basketball’s third annual Angelman syndrome awareness night brought Gabe D’Orazio’s story to center court, turning a beachside idea into a lasting community tradition.
How Heath’s Heroes Keep Turning a Day on the Course Into Research Progress
The Hoffman family’s third annual ‘Hole Out Fore Heath’ golf tournament raised $24,000 for Angelman syndrome research, bringing their cumulative total to over $70,000.
How One Night of Paddle Is Powering Angelman Syndrome Research
The O’Connor family’s Paddle Party for a Purpose raised over $72,000 for Angelman syndrome research—more than doubling last year’s total for son Ryan and families everywhere.
Trips for Tripp: A One-of-a-Kind Fundraiser With a Clear Goal
With a donated South Texas hunt drawing, Ally and Jared Seago raised over $16,600 for FAST—turning a personal connection into meaningful support for son Tripp and Angelman research.
FAST × ASA Angelman Syndrome Clinical Trials Webinar: Europe/UK Sites, Eligibility, and How to Join Trials
FAST and ASA co-hosted a UK/Europe session with Ultragenyx and Ionis, giving families clear updates on ASO trial programs ASPIRE and REVEAL, tailored to UK/EU time zones.
Remi Cup: Driving for a Cure to Angelman Syndrome
The Remi Cup, an annual charity golf tournament in Oklahoma, raises around $35,000 each year for FAST, driven by one family’s love and hope for daughter Remi’s future.