FAST and ASF Announce their Partnership with the Institute for Gene Therapies
ASF and FAST partner with the Institute for Gene Therapies to push for policy changes that ensure patients can access cutting-edge gene therapies for Angelman syndrome.
The PFDD Survey is now open
The EL-PFDD Survey is now open, inviting parents and caregivers to share their experiences with Angelman syndrome to help shape the January 2025 FDA discussion.