Granville Angels Foundation: Bringing families together for Angelman syndrome
The Granville Angels Foundation’s Cornhole for a Cause has raised over $60,000 in three years, uniting a small Ohio community around families’ children John and Sophia.
Reading the brain’s signals to speed better treatments for Angelman syndrome
FAST-funded research identifies peak alpha frequency, an EEG biomarker that could reveal early brain responses to Angelman syndrome treatment before day-to-day changes appear.
Joe Bologna Charity Golf Outing Raises $36,000 for Sutton Strong and Angelman Syndrome Research
The 5th annual Joe Bologna Charity Golf Outing raised $36,000 for FAST, uniting the Sutton Strong community around five-year-old Sutton Smith’s journey with Angelman syndrome.
Ionis Receives Breakthrough Therapy Designation for ION582 in Angelman Syndrome
Ionis Pharmaceuticals’ ION582 has received FDA Breakthrough Therapy Designation for Angelman syndrome, a status reserved for drugs showing substantial improvement over existing treatments.
The Jack Pack’s 207 Miles of Hope
Grace and Dave rode 207 miles in the LoToJa bike race with the Jack Pack team, raising over $23,000 for FAST in honor of son Jack and the Angelman syndrome community.
FAST-Funded Project Introduces First Large Animal Model to Study Angelman Syndrome
FAST-funded researchers at Texas A&M created the first-ever pig model of Angelman syndrome using CRISPR, offering a new platform that more closely mirrors human brain biology.
FAST Global: Cure Angelman Now Fundraising Efforts
From a 1,100km run across Australia to festivals in Paris and golf in Canada, FAST families worldwide raised hundreds of thousands for Angelman syndrome research this season.
CAN Spotlight: Payslie’s Pals Cornhole Tournament Brings Community Together for FAST Research
Now in its 4th year, Payslie’s Pals raised over $15,000 through a community park event, with nearly $12,000 going to Angelman syndrome research in honor of Payslie.
CAN Spotlight: Honoring “Hendu” with Hope and Research: The Always Having Fun Foundation’s Golf Classic
The Henderson family’s Hendu’s Golf Classic raised over $60,000 this year, honoring the late Dave Henderson’s legacy and his son Chase’s journey with Angelman syndrome.
Turning Possibility Into Progress: The Rush F.A.S.T. Center for Translational Research Opens in Chicago
FAST and Rush University Medical Center opened a $5 million translational research center, a groundbreaking hub built to accelerate Angelman syndrome trials and train specialists.