AS Natural History Study Celebrates 20 Years!
Celebrating 20 years of the Angelman Syndrome Natural History Study—decades of data, driven by families and researchers, that continues to fuel discovery and progress.
International Angelman Day Bash: Starting Small, Showing Up Big
From a school bake sale to ‘Pinball with a Purpose,’ Beth Phillips Synk turned nerves into action, raising over $34,000 for FAST in honor of her daughter Immy.
Hope In Action: Angelman Community Delivers Big Wins in FY26 Fund Bill
Congress passed FY26 appropriations with all three Angelman syndrome priorities intact, unlocking $370 million in DOD research funding and advancing key FDA and NIH commitments.
Introducing Team Kick-AS, a new way to rally the Angelman syndrome community through running.
Team Kick-AS is running four marathons across four countries this fall—Dublin, Venice, Valencia, and Honolulu—with every mile raising funds for Angelman syndrome research.
FAST COO Ryan Fischer Named 2026 Co-Chair of EveryLife Community Congress
Ryan Fischer, FAST’s COO, has been named a 2026 Community Congress Patient Advocacy Group Co-Chair, leading regulatory science efforts for the rare disease community.
Join Us on Capitol Hill: Advocate for Angelman Syndrome Research and Awareness
Join FAST on Capitol Hill for its third Congressional Advocacy Day—no experience needed, just your story—to help keep Angelman syndrome a federal priority.
Call on Congress to Enact the FY2026 Defense Appropriations Act
FAST and ASF join a national coalition urging Congress to fully fund DOD medical research programs, protecting critical federal funding for Angelman syndrome research.
An Update on the ION582 clinical development program including HALOS, REVEAL, and CHAMPION Trials
Ionis shares an update on ION582 development, covering progress across the HALOS, REVEAL, and newly announced CHAMPION trials expanding research into additional AS genotypes.
A Home Court for Hope: Drexel Women’s Basketball Champions Angelman Syndrome Awareness
Drexel Women’s Basketball’s third annual Angelman syndrome awareness night brought Gabe D’Orazio’s story to center court, turning a beachside idea into a lasting community tradition.
How Heath’s Heroes Keep Turning a Day on the Course Into Research Progress
The Hoffman family’s third annual ‘Hole Out Fore Heath’ golf tournament raised $24,000 for Angelman syndrome research, bringing their cumulative total to over $70,000.