Voice of the Patient Report Submitted: A Powerful Milestone for the Angelman Syndrome Community
The Voice of the Patient Report from the Angelman syndrome EL-PFDD Meeting has been submitted to the FDA, capturing families’ lived experiences to help drive meaningful treatments forward.”
Trips for Tripp: A One-of-a-Kind Fundraiser With a Clear Goal
With a donated South Texas hunt drawing, Ally and Jared Seago raised over $16,600 for FAST—turning a personal connection into meaningful support for son Tripp and Angelman research.