February 2025: Advocacy updates and actions to take
Despite the postponement of the EL-PFDD meeting, FAST and ASF continue joint advocacy work, from Congressional Advocacy Day to new toolkits and a rare disease policy letter to the administration.
CAN Spotlight: Raye’s Birthday Fundraiser
Three-year-old Raye celebrated her birthday and Early Intervention graduation with a party that raised over $1,000 for FAST’s mission to find a cure for Angelman syndrome.