CAN Spotlight: Remi Cup 2024

In its 3rd year, the Remi Cup golf tournament drew 104 golfers to Oklahoma, raising over $30,000 for FAST as the Matheson family continues advocating for daughter Remi.

The PFDD Survey is now open

The EL-PFDD Survey is now open, inviting parents and caregivers to share their experiences with Angelman syndrome to help shape the January 2025 FDA discussion.

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Find information on Angelman syndrome, research, clinical trials, resources, and ways to get involved.