Meet the people leading FAST’s work across the organization and helping advance our mission.
Executive Leadership
President
Alana Newhouse
Leads FAST’s overall strategy and direction.
Parent of Elijah, who lives with Angelman syndrome.
Chief Financial Officer
Kena Pearson
Oversees financial strategy and operations.
Founding FAST Board member and parent of Ashley, who lives with Angelman syndrome.
Chief Operating Officer
Ryan Fischer
Guides strategic priorities across operations, programs, advocacy, partnerships, and external relations.
Staff
Our staff lead FAST’s day-to-day programs, operations, communications, fundraising, education, and community engagement.
Vice President of Genetic Services and Education
Niki Armstrong, MS, CGC
Family Coordinator
Jena Berndt
Parent of Payslie, who lives with Angelman syndrome.
Accounting Specialist
Amber Bridgers
Database Specialist
Bianca Cortez
Director of Public Engagement
Meghan Edberg, MEd
Parent of William, who lives with Angelman syndrome.
Director of Program and Alliance Management
Ana Ferreira, MPH, PMP
Director of Operations
Laura Foglyano
Senior Vice President, Philanthropy
Elizabeth O'Connor
Parent of Ryan, who lives with Angelman syndrome.
Senior Director of Strategic Communications
Amy Schamp, MA
Vice President, Head of Philanthropy Operations
Sarah Traisman
Strategic Advisors and Consultants
FAST works with independent advisors and consultants who provide ongoing leadership and specialized expertise in areas important to our mission.
Head of Regulatory and Policy,
Co-Director, A-BOM
Jennifer Panagoulias
Leads regulatory and policy efforts and co-directs the Angelman Syndrome Biomarkers a Outcome Mentures Consortium (A-BOM)
Her niece lives with Angelman syndrome.
Global Advisor
Ellen Koekoeckx
Leads FAST’s global strategy and affiliate network, building partnerships and strengthening connections among Angelman syndrome communities around the world.
Parent of Hazel, who lives with Angelman syndrome.
Legal Advisor
Maiddy Dunigan
Provides legal and strategic counsel to FAST.
Founding FAST Board member and parent of Jaxson, who lives with Angelman syndrome.
Chief Science Officer, Co-Director, A-BOM
Dr. Allyson Berent
Leads FAST’s scientific strategy and drug development efforts across FAST initiatives.
Co-founded GeneTx Biotherapeutics and serves in leadership roles with A-BOM, INSYNC-AS, and AS² Biotherapeutics.
Parent of Quincy, who lives with Angelman syndrome.
What are you looking for?
Find information on Angelman syndrome, research, clinical trials, resources, and ways to get involved.