Board of Directors
FAST’s Board of Directors provides strategic oversight, governance, and long-term direction for the organization.
Made up of volunteer leaders with experience across business, finance, science, healthcare, nonprofit leadership, advocacy, and the Angelman syndrome community, the Board helps ensure FAST has the strategy, resources, and accountability needed to pursue our mission.
Board Leadership
Chief Executive Officer, CAE
Ryan Jacob, Chair
Parent of Grayson, who lives with Angelman syndrome.
Chairman, Sustain.Life
Mike Hanrahan, Chair-Elect
Parent of Tom, who lives with Angelman syndrome.
Partner & Senior Portfolio Manager, AS Birch Grove
Guy Shapira, Vice Chair & Treasurer
Parent of Mia, who lives with Angelman syndrome
Global professional experience across government, security, and international affairs
Amelia Beatty, Secretary
Parent of Orion, who lives with Angelman syndrome
Directors
Owner, Frontline Commercial Real Estate, LLC
John Schlueter, Chair Emeritus
Parent of Grace, who lives with Angelman syndrome
Owner & Corporate Manager, Lafayette S.A.S.
Roy Azout
Parent of Michelle, who lives with Angelman syndrome
Clinical Instructor, University of Central Florida Communication Disorders Clinic
Kelly David, M.A., CCC-SLP
Parent of Colin, who lives with Angelman syndrome
SVP Clinical Development, PTC Therapeutics
Nick France, MD, MRCPCH
Nonprofit executive and attorney Expertise in organizational leadership, fundraising, governance, and philanthropy
Alice Rodd O’Rourke, JD
SVP External Affairs and CLO, Ever-Green Energy
Karly Werner, JD
Parent of Louis, who lives with Angelman syndrome
Sr Product Marketing Manager, T-Mobile
Nora Xu
Parent of Arbor, who lives with Angelman syndrome