Welcome to the Community
Whether you have just received an Angelman syndrome diagnosis or are looking for answers, you are in the right place. Find information, resources, and a community of families who understand your journey.
What is Angelman syndrome?
Angelman syndrome is a rare neurogenetic disorder that affects the nervous system and causes developmental delays, challenges with movement and balance, and significant difficulties with speech and communication. It is caused by a loss of function of the UBE3A gene in the brain.
While individuals living with Angelman syndrome share certain characteristics, each person is unique, with their own abilities, personalities, and needs.
Is there a cure for Angelman syndrome?
There is currently no cure for Angelman syndrome, but significant progress is being made toward developing treatments. Multiple therapeutic approaches are in development, with several being evaluated in clinical trials.
FAST is helping drive that progress by funding promising research, supporting scientific collaboration, and building the resources needed to move potential treatments forward.
While there is still much to learn, families have more reasons than ever to follow the science and stay informed about what’s ahead.
different therapeutic approaches in the Angelman syndrome drug development pipeline
active programs in the therapeutic pipeline
investigational clinical trials in human testing
invested by FAST in research and development across 100+ grants and mission-aligned investments
You are not alone. Connect with our community.
When your loved one is diagnosed with Angelman syndrome, you may have more questions than answers. Connecting with families who have been where you are can make all the difference.
FAST’s community engagement team is here to help you find answers, access resources, and connect with families who understand what life with Angelman syndrome can look like.
Whether you’re looking for guidance, community, or simply someone to talk to, we are here for you. Complete the form below and let’s connect.
Hear from Other Families
Every family’s experience with Angelman syndrome is different, but there is so much we can learn from one another. Hear from families who understand the questions, challenges, and possibilities that come with a diagnosis.
Ways to Get Involved
Participate in Research
You and your family can play an important role in advancing Angelman syndrome research. From clinical trials to observational studies and patient registries, there are different ways to participate. Each helps researchers better understand Angelman syndrome and develop potential treatments.
Not sure where to start? FAST’s genetic counselor can help you understand the different types of research and explore opportunities that may be right for your family.
Become an Advocate
Your voice can help shape decisions that affect individuals living with Angelman syndrome and their families. By sharing your experiences with policymakers, you can help raise awareness of the community’s needs and advocate for policies that support research and treatment development.
Through Hope in Action: Progress Through Advocacy, a joint initiative of FAST and the Angelman Syndrome Foundation (ASF), families and supporters can learn how to get involved and make their voices heard at the local, state, and federal levels.
Support Research
Every promising treatment begins with research, and moving that science forward takes significant resources. FAST invests in research, scientific tools, and partnerships that help advance potential treatments for Angelman syndrome.
Families and supporters play an important role in making this work possible. Whether you make a donation, start a fundraiser, or invite others to support FAST, there are many ways to help move research forward.
Request Educational Resources
Help spread education and awareness within your family and local community. From sharing your diagnosis to educating schools, therapists, and clinicians, our resources can help build knowledge for those in your loved one’s life. Send us an email and we can provide what you’re looking for.
Moments of Hope by a Team Who Gets It
Find a FAST Event Near You
Connect with other Angelman syndrome families through local gatherings, community events, and FAST-sponsored activities. Explore upcoming events and find opportunities to meet families, share experiences, and get involved.
