For Jack: Sonia and Jose Take on the Inca Trail
Before Sonia and her son José set off on Peru’s Inca Trail this September, their guides gave the group two goals: survive first, and finish if you can. For Sonia and José, finishing mattered. They were hiking in honor of Jack, Sonia’s son, who lives with Angelman syndrome, and raising money for research through FAST’s […]
Dream Big: One Family’s Journey from the Altar to the Start Line
Thomas and Johanna Kennedy turned their daughter Anabella’s Angelman syndrome diagnosis into a movement—weaving advocacy into their wedding and now running the Dublin Marathon for a cure.
Introducing Team Kick-AS, a new way to rally the Angelman syndrome community through running.
Team Kick-AS is running four marathons across four countries this fall—Dublin, Venice, Valencia, and Honolulu—with every mile raising funds for Angelman syndrome research.