FAST Action Council
The FAST Action Council is a group of parent and caregiver volunteers who help expand FAST’s reach through advocacy, fundraising, and community engagement.
Council members draw on their own experiences with Angelman syndrome to support FAST initiatives and help others find meaningful ways to get involved.
FAC Chair
Communications Lead, Cigna
Beth Phillips Synk
Parent of Imogen, who lives with Angelman syndrome
Physician Assistant, Hospital Medicine
Julie Renner
Parent of Sophia, who lives with Angelman syndrome
Physician, Cooper University Hospital Emergency medicine, medical toxicology, addiction medicine
Joe D’Orazio, MD
Parent of Gabriel, who lives with Angelman syndrome
CEO, COMBINEDBrain Translational neuroscience
Terry Jo Bichell, PhD
Parent of Lou, who lives with Angelman syndrome
President / CEO, Boys & Girls Clubs of Elkhart County
Tami Hicks, PhD
Parent of Ethan, who lives with Angelman syndrome
Former Science Teacher / Homeschool Educator
Emily Planton
Parent of Briar, who lives with Angelman syndrome
Executive Director / President MC Shaw Associates / Maddie’s Mission Foundation
Laura Sargent
Parent of Maddie, who lives with Angelman syndrome
Paralegal for Public Services Union member legal team
Sara Gainey
Parent of Kayleigh, who lives with Angelman syndrome
Former Technical marketing director, steel consumables industry
Roy Phillips
Grandparent of Imogen, who lives with Angelman syndrome
Project Manager UNHCR, the UN Refugee Agency Industry, Global Perspective
Samantha Eisenhauer
Parent of Pietro, who lives with Angelman syndrome
Get Involved
The FAST Action Council is one of many ways families and caregivers can help strengthen the Angelman syndrome community and support FAST’s mission.