Become an Advocate for Angelman Syndrome
Hope in Action unites the Angelman syndrome community to build grassroots relationships and advocate for policies that improve lives.
Hope in Action: Progress through Advocacy
The Angelman Syndrome Foundation (ASF) and the Foundation for Angelman Syndrome Therapeutics (FAST) are united and committed to making a significant impact in the Angelman syndrome community through grassroots advocacy. This commitment is what led us to jointly launch Hope in Action: Progress through advocacy.
“Hope in Action” is a call to action – to recruit a grassroots army of Angelman syndrome families and friends to foster relationships with members of state, local, and federal governments to advocate for policies that have the potential to positively impact the lives of our families.
Our Angelman Syndrome Advocacy Priorities:
Increase
Increase the federal focus and research investment in Angelman syndrome
Improve
Support legislation to improve the quality of life for people with AS and their families
Represent
Ensure that regulatory & public policies reflect the priorities of the AS community
Accelerate
Advocate for FDA flexibility and appropriate speed in review of potential therapies
Integrate
Ensuring family experiences and preferences are integrated into therapy development and delivery, from study design through health plan access
Support
Support legislation and policy at the state and federal level aimed at supporting caregivers
How You Can Advocate for Angelman Syndrome
A multi-tiered approach to advocacy for Angelman syndrome. Visit our combined website to learn how to get involved.
Angelman Syndrome Congressional Advocacy Day
Join Us in Washington, DC
You do not need experience, the “right” words, or a background in policy. You bring your story and your voice. We’ll provide training, talking points, and support so you feel prepared and confident.