Introducing FAST Tracking Research with Na’ama and Kai

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FAST, the Foundation for Angelman Syndrome Therapeutics, is pleased to introduce an educational video series, FAST Tracking Research, with Na’ama and Kai. This series will be led by two siblings living with loved ones with Angelman syndrome, Na’ama Uzan and Kai Weisse. FAST Tracking Research is designed to help educate individuals on the science behind […]

Gene Therapy in Angelman Syndrome: Agilis Biotherapeutics

By Allyson Berent, DVM, DACVIM  At the annual Foundation for Angelman Syndrome Therapeutics (FAST) Global Summit in December, Jodi Cook, Ph.D., Chief Operating Officer for Agilis Biotherapeutics (Agilis), presented on gene therapy development for Angelman Syndrome (AS). Her presentation was very exciting for the community as we prepare to bring gene therapy treatment into human […]

FAST Summit Live stream

Livestream

Watch all the news and updates from the Science Summit 9-5pm Friday, December 2 (CST) and
the Education Summit on Saturday December 3, 9-4PM.

Gene Therapy 101

written by Allyson Berent, DVM DACVIM When we refer to gene therapy in Angelman Syndrome (AS), we are typically referring to a “viral delivery” or “virus vector” of the missing gene (UBE3A) or the missing protein (UBE3A protein) into the brain. AS is caused when the UBE3A gene is either missing or not functioning properly; […]

FAST Research Series

Read our regular series summarizing lectures presented on Friday December 4th, 2015, the first day of the 2015 FAST Global Summit. This series will be focused on research, pre-clinical, and future clinical trials

Summary of FAST 2015 Research Lectures

*Disclaimer: All of the summaries published here are only an interpretation by A. Berent of each lecture. None of these lectures were personally transcribed by any of the presenters or companies involved. The Foundation for Angelman Syndrome Therapeutics (“FAST”) is writing a summary of all of the lectures presented on Friday December 4th, 2015, the […]

Moms Rock!!!!

On May 11th in Castle Rock, Colorado, approximately 400 participants came out for the first-ever “Moms Rock 5K” for FAST!  A virtual run was also held with several angel families lacing up for their own race. Runners and walkers enjoyed some awesome Colorado spring weather, a great silent auction with a ton of amazing items donated […]

The Ripple Effect

My name is Alex McFee; I am a senior at Western Michigan University and am an active member of my sorority Sigma Kappa.  Each year for Greek Week the fraternities and sororities at my school choose one member from each chapter to represent them.  This year, I was chosen and one of my responsibilities was […]

Thank You…

Did you know that the Angelman community is the driving force behind research into treatments and a cure for Angelman Syndrome?  Did you know that the Angelman community, single handedly, funded both the research on and the clinical trial for Minocycline as a Treatment for Angelman Syndrome?  Did you know that the Angelman community has […]