Blog

Little Things That Inspire…

by Jason Berkley Cindy and I had been together just a little over five years when Jamie was born. We already had a 4-year-old son Luke and a 2-year-old daughter Maddie at home. Life was moving along like a storybook: nice house, good jobs for each of us, and three healthy kids at home. Even

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Do You Believe?

 By Tina Thompson Somebody was mowing a lawn. Finn hurried down the sidewalk searching for the source of the unmistakable sound. I followed, a few paces behind. Halfway down the block, he stopped. Whoever was mowing was in the backyard and completely hidden from view. Finn anxiously paced back and forth in front of the

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Community Nominates FAST for Chase Giving Contest

Great news!!!!  The Angelman community has nominated the Foundation for Angelman Syndrome Therapeutics (FAST) to be a part of the 2012 Chase Community Giving Program.  The top vote getter in the Chase Community Giving Program will be awarded $250,000. As many of you know, FAST won the Grand Prize of $250,000 in the Vivint Gives

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Mountain to Valley Race – Running for those who cant

Hi, my name is Candy Underhill and I am the founder/race director for the Mountain to Valley 10 Miler & FAST 4 Miler. Two years ago, my son, Sam, was diagnosed with Angelman Syndrome. I remember the only feeling I could label was “devastation.”  All the dreams we had for him were now replaced with questions–will he

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“A Night for the Angels” – Down Under

by  Michaela Townsend My son Jake is 3½ years old and was diagnosed with Angelman Syndrome (AS) about 18 months ago. The adventure of “A Night for the Angels” started when I attended a fundraiser for Jake’s early intervention service, “Lifestart,” in June of last year. The night was a huge success and got me

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Finding Wings to Fly

By Deanna McCurdy I am frequently asked two questions:  “Why do you run?” and secondly, “What’s your secret to doing what you do?”  My running “career” began in high school when I ran track and cross country.  I was given a scholarship to run cross country at the University of Evansville, a small division I

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FAST-initiated Clinical Trial

I want to thank all those parents who applied for enrollment in the minocycline clinical trial. The clinical trial began on schedule April 16, 2012. We are now at a point where half of the patients have received the drug for eight weeks and are beginning to be seen for their follow up appointments. As

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