Blog

“A Night for the Angels” – Down Under

by  Michaela Townsend My son Jake is 3½ years old and was diagnosed with Angelman Syndrome (AS) about 18 months ago. The adventure of “A Night for the Angels” started when I attended a fundraiser for Jake’s early intervention service, “Lifestart,” in June of last year. The night was a huge success and got me

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Finding Wings to Fly

By Deanna McCurdy I am frequently asked two questions:  “Why do you run?” and secondly, “What’s your secret to doing what you do?”  My running “career” began in high school when I ran track and cross country.  I was given a scholarship to run cross country at the University of Evansville, a small division I

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FAST-initiated Clinical Trial

I want to thank all those parents who applied for enrollment in the minocycline clinical trial. The clinical trial began on schedule April 16, 2012. We are now at a point where half of the patients have received the drug for eight weeks and are beginning to be seen for their follow up appointments. As

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Angel Runners LA Marathon

by Jason Bernstein On March 18, 2012, the 27th edition of the LA Marathon was run through the City of Angels. Timothy Misiak, Mary Fasang, Chad Dunigan, and I raised over $1,000 for the Foundation for Angelman Syndrome Therapeutics (FAST). We weren’t the only people running for charity.  American Idol winner, David Cook, would run

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FAST Receives $250,000 Anonymous Donation – Ambitious Research Project Underway

In 2008, the Foundation for Angelman Syndrome Therapeutics (FAST) was formed and invigorated the community with our fresh energy, our aggressive approach to Angelman Syndrome (AS) research, and our concise mission to bring practical treatment into current medical practice as quickly as possible. In April 2012, FAST was thrilled to receive an anonymous donation of

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FAST funds 3rd Postdoctoral Fellowship Grant

The path to running a research group is a long one.  Scientists are first trained in graduate school to obtain a doctorate degree in their chosen field.  In the US this can typically take four to seven years.  After graduation, scientists typically do an additional three to six years of training beyond their graduate work,

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Firing research in Australia

With a relatively small Angelman syndrome (AS) population (statistically around 1500 cases) spread across our wide brown land, the Foundation for Angelman Syndrome Therapeutics (FAST) Australia has had an amazing first two years. A number of fantastic events organised by dedicated families and friends; a Night at the Races, the glamorous Night for Angels in Sydney and the Take Flight for Angels

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