Hi, my name is Candy Underhill and I am the founder/race director for the Mountain to Valley 10 Miler & FAST 4 Miler. Two years ago, my son, Sam, was diagnosed with Angelman Syndrome. I remember the only feeling I could label was “devastation.” All the dreams we had for him were now replaced with questions–will he
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5th Annual FAST Gala – Evening with the Stars, Benefit for the Angels & Inaugural FAST Global Summit on Angelman Syndrome
Just when you thought it couldn’t get any better – FAST is thrilled to announce the 1st Global Summit on Angelman Syndrome. The summit will include an Education Strategy Seminar on Saturday afternoon and a Scientific Round Table with Q&A on Sunday. These two events will be free to our AS parents and guests. Please
“Strength Through Human Understanding” Eastside High School Selects FAST for 2012 Spirit Week
Eastside High School, located in Taylors, South Carolina, has selected the Foundation for Angelman Syndrome Therapeutics (FAST) as their charity of choice for Spirit Week 2012. To truly understand how unique this event is, you need to know the history behind it. Eastside High School first opened its doors in 1970 when Wade Hampton High
Running FAST – A Father’s Perspective on Channeling the Emotions Angelman Syndrome Can Stir
By Terry Sullivan There are events in a person’s life that he or she never forgets. Usually, these are weddings, children’s birthdays, milestones or accomplishments in a professional career or even simple moments spent with people you care about that elicit a random smile upon reflection. The key point is, these unforgettable events hopefully provoke
“A Night for the Angels” – Down Under
by Michaela Townsend My son Jake is 3½ years old and was diagnosed with Angelman Syndrome (AS) about 18 months ago. The adventure of “A Night for the Angels” started when I attended a fundraiser for Jake’s early intervention service, “Lifestart,” in June of last year. The night was a huge success and got me
Finding Wings to Fly
By Deanna McCurdy I am frequently asked two questions: “Why do you run?” and secondly, “What’s your secret to doing what you do?” My running “career” began in high school when I ran track and cross country. I was given a scholarship to run cross country at the University of Evansville, a small division I
FAST-initiated Clinical Trial
I want to thank all those parents who applied for enrollment in the minocycline clinical trial. The clinical trial began on schedule April 16, 2012. We are now at a point where half of the patients have received the drug for eight weeks and are beginning to be seen for their follow up appointments. As
Angel Runners LA Marathon
by Jason Bernstein On March 18, 2012, the 27th edition of the LA Marathon was run through the City of Angels. Timothy Misiak, Mary Fasang, Chad Dunigan, and I raised over $1,000 for the Foundation for Angelman Syndrome Therapeutics (FAST). We weren’t the only people running for charity. American Idol winner, David Cook, would run
FAST Receives $250,000 Anonymous Donation – Ambitious Research Project Underway
In 2008, the Foundation for Angelman Syndrome Therapeutics (FAST) was formed and invigorated the community with our fresh energy, our aggressive approach to Angelman Syndrome (AS) research, and our concise mission to bring practical treatment into current medical practice as quickly as possible. In April 2012, FAST was thrilled to receive an anonymous donation of
FAST funds 3rd Postdoctoral Fellowship Grant
The path to running a research group is a long one. Scientists are first trained in graduate school to obtain a doctorate degree in their chosen field. In the US this can typically take four to seven years. After graduation, scientists typically do an additional three to six years of training beyond their graduate work,
