Community statement from Ionis

 Dear Angelman Syndrome Community,  We are writing this letter to share with you an update on our progress towards initiating our clinical trial in people living with Angelman syndrome. Last year was incredibly difficult on so many levels, and while 2021 will continue to have its challenges, we remain hopeful that our lives will begin […]

FAST LatAm Part 2: Bienvenido FAST Chile

Recently we welcomed FAST Latin America (LatAm) to the FAST Global community, highlighting FAST Argentina and FAST Colombia. To read more about these two countries leading the way in LatAm, visit FAST LatAm Part 1: Argentina and Colombia. This month we have the pleasure of welcoming FAST Chile to the FAST Global community! Despite being one […]

Further Understanding the FAST & GeneTx Relationship

We have noticed a number of questions concerning how GeneTx is funded and specifically who pays for the salaries of the GeneTx employees.  We understand your concerns and would like to clear things up. In a nutshell, GeneTx is a separate company.  While FAST owns a majority of GeneTx, the company has other investors as […]

INSYNC-AS: A collaboration between FAST and the Simons Foundation Autism Research Initiative (SFARI)

INSYNC-AS: A collaboration between FAST and the Simons Foundation Autism Research Initiative (SFARI) The Foundation for Angelman Syndrome Therapeutics (FAST) is here to demonstrate our commitment to identifying and furthering scientific advancements for various potential therapeutics that treat Angelman syndrome (AS) through this exciting collaboration with the Simons Foundation Autism Research Initiative (SFARI). The launch […]

Meet John Schlueter

In 2013 my amazing daughter, Grace, was born.  She was perfect in every way.  She had beautiful blue eyes, blonde hair, and a smile that would light up any room.  It was at 6 months that we realized this joyful little love wasn’t progressing as she should.  An extremely frustrating 12 months later, we finally […]

Foundation Update from the Board of Directors

Important News for the FAST Community The FAST Board of Directors announces that John Schlueter has been named to serve as interim Chairperson of the Board, with Bryan Thompson and Kelly David serving as Co-Vice Chairs. This leadership change enables our former Board Chairperson and founding member, Paula Evans, to focus attention on her vital work […]

FAST Spain: The Dream Team

“Mom, don’t worry, I have come with a syndrome and the cure. It is on this path that I want you to be at my side.” Casilda Cebrián awoke in the middle of the night realizing it had been a dream. She was at the NICU next to her eight month old son, Anton, whom […]

Welcome FAST Latin America PART 1: FAST Argentina and FAST Colombia

Welcome FAST Latin America PART 1: FAST Argentina and FAST Colombia About 1 in 15,000-20,000 individuals have Angelman syndrome (AS). Latin America is home to 652 million people. That means there are about 42,000 people living with AS throughout Latin America. According to FAST Latin America (LatAm) there are, in fact, only about 1,600 families […]

Virtually Unstoppable: A Global Experience

This year’s virtual Summit & Gala has proven that FAST truly is global. Over 1,700 people from 61 countries around the world tuned in to FAST’s Virtually Unstoppable Global Summit & mini-Gala. Friday’s Science Summit viewers in Japan watched the keynote speaker, Dr David Meeker, at midnight. Angelman parents in Lebanon and France joined, “lunch […]