2015 FAST Summit & Gala

 

GalaSponsor2



Science Summit

Becky Burdine, Ph.D. ~Introduction/Therapeutics in Angelman Syndrome

Ovid Therapeutics ~The use of Gaboxadol (OV101) in the treatment of Angelman Syndrome. Down stream therapeutics working at the neuronal synapse.  Discussion of future clinical trials.

Agilis Biotherapeutics ~ The use of gene therapy for the production of UBE3A in the treatment of Angelman Syndrome.  Discussion of future clinical trials.

Disruptive Nutrition ~ The use of Ketone Supplements for the nutritional management of Angelman Syndrome.  Discussion of pre-clinical trial outcomes and future human clinical trials.

Vivint ~ The use of a smart technology home security system to protect your loved ones.

FAST FIRE Team

The most aggressive, novel, innovative research initiative whose goal is to identify treatments for Angelman Syndrome.

FIRE Team Q&A 


Educational Summit 

Linda Burkhart & Gayle Porter ~

Information to clarify desirable long-term outcomes and evidence informed practices towards the development of accessible, autonomous communication for children who use AAC.

Q&A/Panel Discussion

David Koppenhaver & Susan Norwell ~

Key principles and strategies including structured shared reading, predictable chart writing, independent emergent reading and writing, and early skills instruction.  The use of Core Vocabulary and Soft-Tech Reading Page Sets and how they support communication during shared reading.  Decision tree for determining when emergent literacy or conventional literacy instruction is most appropriate.

Q&A/Panel Discussion

 

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