Newly Diagnosed

We are all parents of children with Angelman syndrome, and we’re standing by to answer questions and assist you. Please follow these steps:

 

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1. REGISTER WITH FAST

Receive access to all of our resources, and stay informed about research, clinical trials and events. There is no membership fee or commitment.

Register

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2. TALK TO PAULA

Paula Evans founded FAST in 2008 after doctors told her there was no hope for her daughter who has AS. She likely can answer any question you have.

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3. EDUCATE YOURSELF

Browse our website, blog, and social media sites to arm yourself with information. Learn more about Angelman syndrome, your child’s diagnosis, questions to ask your doctor, therapies and much more.

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4. MEET OTHER PARENTS

FAST was founded by parents, and it is the place to find a strong community who will listen, offer support and share advice. Your FAST friends will be able to truly understand what you’re going through.

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You Are Not Alone

The feeling of isolation at the time of diagnosis is almost universal among parents. Sometimes, the best way to overcome this feeling and gain understanding is to hear from those who’ve been there before. Connecting with others who share the same rare experience with Angelman syndrome can be helpful when you’re ready. In the meantime, we asked parents of children with Angelman syndrome to share what they wish they had been told as a parent whose child was just diagnosed.

 

 

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Colin's Note
Colin's Note

Helpful Resources


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Cure
Angelman
Now

As diverse as our Angelman community is, we are all united in one goal: a better future for our children. FAST is committed to bringing life-changing treatments to clinical trials within two years, but we need your help.

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